I'm wondering what PALS and their caretakers do when the later stages of ALS hit? What do you/they do to stay mentally alert and active. I imagine it must get boring watching TV all day. Any ideas are very helpful. My PALS has trouble talking, is on a cpap (sp?) machine most of the day, is...
It's been over a year since I visited this forum and looking at it today, I am reminded again by what an amazing support system it is for those who have been affected by ALS.
My father passed away in March 2012, and it feels like such an incredibly long time ago. So much has changed since he...
My mom woke me at 5:00am yesterday asking for her blood pressure meds. I told her it was really too early as we usually give them to her around 9:00 am. But she said she was having a panic attack. If she has had that happen before, she has never told me. I know she very often has high anxiety...
**I've decided to start my own thread: I've answered under another thread, however not sure if pple would be able to see it, as it was from awhile ago: sorry for the double post, I'm not savvy on forum dedicate.
Dear community
Thank you for reading my post. I write you today in hopes of...
My husband was diagnosed 1 year ago. He has minimal movement in his arms. I had back surgery. My dog had a stroke and we got hit by lightening. My only daughter has her hands full with her three kids and my 88 year old dad. My friends are dropping off like flies. I am heartbroken as I watch his...
caretakers i understand its hard on u but try not treat us like idiots especially the ones getting paid. if we say something isn't right dont tells us it is just fix it. :-(
Hello again friends. Tonight's problem - mom sleeps downstairs, caretakers sleep upstairs. 'Til now we've relied on a baby monitor plus a dinner bell she rings when she needs help in the night. But can anyone think of a good solution when she can't get to, or ring, the dinner bell? She can no...
I hope this is ok to post. I saw someone asking about a live in caretaker and just wanted to share this info. There is a little newpaper that is posted 4 times a year and added to almost daily if you get the online edition. It is the Caretaker Gazette and people post ads requesting help of...
Hello All and thank you for taking the time to read my post. In the past few months I have gained so much respect for those living with not just ALS but any illness. It takes courage to deal with all that comes along with life on a daily basis. I pray for all of the diagnosed and the...
als
als?
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Requesting information on the weight issue . . . My doctor has told me to track my weight weekly and he does not want me losing any. I've heard from him and the ALS Association that even adding 10 lbs won't be 'bad'. I am not thin, but not obese. For the ladies out there, I'm about a 12/14...