caretakers

  1. Y

    Seeking Opinions

    Hi Everyone, I would first like to commend everyone on this forum for their willingness to listen and respond, give advice, and for giving an honest answer where it is due. My heart goes out to anyone who is suffering from ALS and the caretakers whose loved ones are fighting. I grew up with my...
    • young
    • Thread
    • advice als als? atrophy brain caretakers cramping diet emg exercise eye father fatigue female health heart muscle neurologist pain scared shaking sleep stiffness symptom symptoms twitches twitching wanted weakness
    • Replies: 7
    • Forum: Could this be ALS?
  2. A

    Family Members in Denial

    All -- My mother is in her late 70's, has no ability to move her legs and has limited use of her arms, which means she has limited strength in her hands and forearms and that's it. Her breathing is okay but below 50 percent. She is only beginning to have trouble swallowing. She lives with...
    • AnxiousWaiting
    • Thread
    • ability advice anxiety back breathing caretakers denial depression diagnosis family feeding feeding tube fell food hope paralysis swallowing switch trouble swallowing walker wheelchair
    • Replies: 28
    • Forum: Current caregivers
  3. M

    Microsoft Research survey for caregivers of PALS

    Microsoft Research is working on developing communications technologies to improve quality of life for people with ALS and their families. We have a short (5 - 10 minute) online survey that caretakers of people with ALS can take that will help inform some of these technologies. You can take the...
  4. E

    Transferring Vent PALS to Nursing Facility

    Hi fellow CALS, My name is Ariel. It's been many years since I've posted on this forum but our family has determined we need some help form those that might have more experience than us. My mother has had ALS for 10 years now. She's completely paralyzed except for eyes and mouth (which have...
    • elengeniero
    • Thread
    • ability cals caretakers conversation crying dad diagnosis emotional lability eyes family father hospice insurance life love medicare muscle palliative care pals paralyzed quality of life research software support vent ventilator
    • Replies: 4
    • Forum: Current caregivers
  5. M

    Planning move home; could use your help.

    Hello All, We're planning a move home for my mother. She's currently at a nursing home. The nursing home can't/won't keep up with her needs, and we can't afford to pay them AND pay a private caretaker to be by her side at the nursing home. So, we're planning to take her home for care...
    • Mr Wings
    • Thread
    • advice age als bipap caretakers cough assist dad electric wheelchair hospice hoyer hoyer lift lift money night nursing home planning questions speech suction wheelchair work
    • Replies: 12
    • Forum: General discussion about ALS/MND
  6. Nuts

    Jeff Long is with Jesus

    That was Barb Long's FB post yesterday, that Jeff is now with Jesus. Jeff's is the first public message to my account; he lead us to our wonderful PVA rep, and as a result helped us in so many more ways. We were fortunate to meet Jeff, Barb, and their beautiful daughter Kaylee two years in a...
    • Nuts
    • Thread
    • als alsa ball caretakers family grief health heart lead transfer
    • Replies: 10
    • Forum: In memory of
  7. P

    BARTON Medical TRANSFER WHEELCHAIR

    BARTON Medical TRANSFER WHEELCHAIR Used by caregivers to transfer patient with greater ease to many different locations and positions. Brand new cost was $6,500 and we are asking $2,500 OBO. My mother in law had ALS and these items are things these patients and their caretakers must have. For a...
  8. tripete

    Peter Butter Pie

    Here is one of my best creations, lots of calories :twisted:. It started from a very simple vanilla pudding recipe my mom use to make for us when we where growing up. We where very poor and it was a good cheap desert. Over the years I modified it to create a Peanut Butter Pie that my mother in...
  9. A

    Adventure!

    For the past 8 months my husband and I have planned to visit friends in Singapore, Cambodia, and Western Australia. MG’s PLS has progressed. He is walker dependent and extremely slow, and has resisted getting a wheelchair. He can eat but swallowing is slow. His speech varies but has been...
    • avnl
    • Thread
    • anxiety bed caretakers medical mobility pls progression scooter speech swallowing travel trip walker website wes wheelchair work
    • Replies: 5
    • Forum: Primary lateral sclerosis
  10. S

    spouses and caretakers?

    I'm recently diagnosed with ALS and have already found helpful information here on this forum. But where can my wife go to find out what she is in for? I'm really surprised there is not a link for spouses and caretakers. Or did I overlook it? Or should she just pick any link and chime in? I...
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