caregiving

As it's been almost a year now since My Lizzy passed and as some know I have someone new in my life whom I think the world of. My G/F was very upfront about her Bipolar M/D condition right from when we started just chatting as old friends about How I was doing and if the kids needed anything (...

Well we are at our first Birthday of Lizzy's without Her.. Time will tell how the Kids will do today.. can't help but feel an overwhelming feeling of being completely Alone in the world today.. doing my best to get thru my work day as we all know what a financial burden years of caregiving and...

I'm wondering how many caregivers on this forum have experienced criticism from family members regarding your caregiving? My PALS' best friend emailed a family member and complained. And my family member believed them! What is worse, my PALS also complained about me not being nice enough. While...

My wife has Bulbar ALS, diagnosed since Oct. 2016. Some background prior to her diagnosis is necessary to get context: My wife, myself, and our now 19 yo daughter moved from RI to FL to care for my 91 year old Dad in July 2013. We moved in with him. He was very demanding and...

Hello, I hope you can help me, and I apologize for asking such a difficult question, but I feel very overwhelmed right now. My mother was diagnosed in July with extremely progressive ALS. When she was diagnosed her lung capacity was at 30% and has diminished considerably since then (while...

It's amazing how in the end, this grief really is about how I've lost the love of my life and not as much about the way I lost him or the tremendous amount of caregiving I did to keep him alive as long as possible. But...the way I lost him is not OK either and I think it's given me PTSD. He was...

Greetings good ladies and gentlemen! I don't post here as often as I'd like... but, for me, time is a privilege and not a promise. From time to time, I feel it important to chronical where we are, currently. I honestly don’t know if I do this for you, the reader… or for me, the CAL. One day...

Update on my mom, she continues to decline quickly. She is now exclusively in a wheelchair as she can no longer use the rollator. She has a home health aid that comes in two times a week for two hours in the mornings but home health aids are expensive. My mom doesn't qualify for palliative or...

In a very odd coincidence, a casual friend of mine is also a CALS. Her then fiance was diagnosed with ALS is November of 2013 after a 9 month long diagnostic process. Given a lot of his symptoms and that he is a vet and over 50 white male (higher risk groups all around per our Dr anyway) I am...

... and I still miss my mum everyday. I still cry when I think of what she went through. I still feel so sad that there's still no cure. Just this week I had to take time off work as I fell back into a deep place of anxiety. I just miss her so much and I am considering returning to...