caregiving

  1. S

    New caregiver

    So sad. Husband diagnosed end of December. He's very used to being in charge and making all the decisions. I am a RN/NP. So I know a bit about caregiving. He fights me on all the ways to do things. Slowly he is beginning to listen to me but it's frustrating. I only seem to cry when...
  2. V

    It's been 3 years

    This month marks 3 years since my husband was diagnosed. He is still progressing very slowly, for which I am thankful. His left hand is completely gone, his left arm is weak, and he tells me his right grip is getting weaker. He can still walk, talk, and eat. My caregiving role is currently...
  3. Nuts

    Never thought I'd be here...

    FTD was my greatest fear early on. Then I thought we'd escaped it. Now...not so sure. Memory loss...cognitive impairment (slow processing)_ and now full blow hallucinations and bad behavior. I've been told at least once to find someplace else to live. Im not taking the mean remarks...
  4. L

    VA coverage for 24 hour care?

    Hi, everyone. This is such a wonderful community you all have built. I have learned so much already and am so grateful for this resource. My friend has very recently been diagnosed with ALS, bulbar onset. Diagnosis was only about 3 weeks ago, but things have been progressing rapidly as his...
  5. S

    Now I've become Her Burden

    It's been close to 2 years since My Liz was taken from us after a 5 year ALS battle. And yes I have started a new life with a wonderful new Wife. The last 3 months have been horrible. I can't shake the feeling I'm cheating on Liz and shouldn't be happy. Thankfully my 2 children are not only...
  6. gooseberry

    Something that works

    I wanted to share something that is helping me regain my health and strength after my caregiving. It is nutritional cleansing. It is an easy to use system that provides all needed nutrition and helps you clear the toxins, oxidative stress, etc from your body. There are different retailers out...
  7. K

    I hope I'm not letting him down

    In the Fall of 2015 my dad started noticing some weakness and stiffness in his arms. He became more easily fatigue that normal, began feeling like it was taking more and more effort to breath. Being an active person, he particularly concerned and decided to pay a visit to the family doc. On...
  8. NothingButLove

    In about 6 hours, my wife will have a feeding tube

    In about 6 hours, my wife will have a RIG placed at UCI's radiology suite. What a crazy two months. It all started on August 1st. Here's a brief run down: FVC down to 44% from 87% four months earlier. Doctor prescribes Trilogy. (Thank you Laurie for the settings!) Wife takes vacation with her...
  9. S

    Student life vs Caregiver life

    Hi Guys! This is my first time ever on a forum so I would definitely appreciate any kind of guidance! So what brings me here...I'm a 23 y/o caregiver to my 51 y/o mother. She's been a PALS for about 4 years now. There are 6 of us in the family but my little sister and I are the main...
  10. J

    New Caregiver

    Hello, my name is Jaime, and I've been caregiving for a close friend of mine, who's been diagnosed with ALS. I decided to try the forum, to help understand my own emotions and questions I have while watching the awful disease that is taking a friend of mine. Im 32, my friend is 71. He's been...
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