caregivers

dian_na's mother passed away Sunday afternoon, four and a half years after her ALS diagnosis. Like most of you caregivers, Diana didn't have a lot of time to participate on ALS forums, but when she did, it was always worth reading. May the piece and comfort of God wrap around her and...

Hello..does anyone know of any sites on the internet that set up in home caregivers in exchange for rent? Ideally I am looking for help daily 4-9 and some weekend hours. We have an efficiency apartment attached to our home..but do not have any idea how to even start the process. We are on year 6...

Reading the Things I Hate thread in the Past Caregivers' section, I was struck by cubcake's "I love that I got to walk in the sunshine with him today, and I closed my eyes and pretended for just a moment that we were 'normal.'" It was right at the bottom of the post and it just about knocked me...

My Theme Song! Des'ree - You Gotta Be - YouTube

Advocacy ALS Canada Hill Day June 4-5, 2012 ALS Canada is working hard to improve the quality of life for people living with ALS. That means advocating on their behalf – and their family caregivers too – as they often experience financial hardship in the wake of this disease. We will bring...

For those caregivers who were spouses with kids, I'm sure you can relate that in addition to caring for your spouse, there was always the overwhelming concern about the kids too and how ALS completely impacted them as well. ARGH! All so hard. i've watched my oldest daughter learn and...

someone mentioned to me once that i should visit the caregivers forum but i cant locate its location anyone know?:-?

Turns out my husband didn't receive the AVAPS machine he as supposed to. He has a BiPap which seems to be fine, but his neuro really wants him to have the other. So, we are waiting for a call from the sleep clinic. Any of you have experience with an AVAP over a BiPap? Are they pretty much...

We as caregivers have experienced ALS closeup and personally. It is sometimes very scary to realize someone that you love and care for is undergoing personality changes. This article explains some ALS behavior. I hope that it will help some of you. Cognitive and Behavioral Challenges in Caring...

I apologize - it has been so long since I last have been on here I almost forgot how to post! Life has been a lot of the same old same old. Jim is progressing slowly, though some of his ALS symtoms have been coming up. He has lost weight yet again. His breathing is stable but he has lost a lot...