caregiver

Just rambling. Today was 3 weeks since Ferd died. I've been trying to get the thank you cards done and have been in tears all weekend. I got the online stuff finished but the cards are still waiting, Not sure what it is about them that is so hard but... Getting his things together and doing the...

Good Morning, My mom was recently diagnosed with ALS, then a couple months later she fell and broke her hip. Right now she is in rehab but once she is out, I plan to bring here to live with me to be here caregiver. I live two states away and was wondering if anyone has any advice of...

New friends, My name is Jessi and my mother in law, Eileen, was just diagnosed with ALS about 3 weeks ago. She is a 2 time breast cancer survivor so they are unsure of whether or not her ALS is related to the radiation she underwent as a part of her cancer treatment or not. She lost total use...

Hello, I’m new to this forum. My mother was diagnosed with ALS in June of 2017. However, we believe her symptoms began a year or more prior. As you all know, it was devastating. My father is her primary caregiver. The ALS Association assists us with a nurse aid for 10 hours per week. We...

Hey all, Have only posted once or twice before. I'm the caregiver for my partner, Mike, who has been diagnosed since August 2011. He uses a power chair and a feeding tube (although he's fortunately still able to enjoy a beer every night), a sip and puff respirator as he needs, and we use a...

My PALS friend has taken a turn, her husband is in the hospital with his own illness, her son is worthless and her caregiver is calling me for advice. As a background, she is not on a bi-pap, does have a feeding tube, only can move her neck and has some speech left. She is on small doses of...

Hi - My name is Michelle and my sister was diagnosed with ALS April 2015. She seems to have got it pretty bad and drawn out. At first it was just her tripping a lot, then she would just fall and couldn't get up, couldn't get off the toilet or out of bed without help. As it got worst and worst...

Hello to all! I am a 42 year old caregiver of my MIL with ALS. Recently she has been experiencing a lot of itching in her diaper region and her legs. mostly the waist, and where the diaper rubs most. We have tried diaper rash creams, hydrocortisone creams, and benadryl. Does anyone know of...

Hi there. I am a new caregiver to a young man with PLS. Just here to educate myself and learn how best to help him. He says he doesn't want pity but my heart breaks for him. I don't pity him....I just have grown to care about him. As a caregiver is this normal? I know it's a job but I feel...

Hello,all, I am a non related caregiver for a patient who has completely lost use of all extremities, but retains voice and enough ability to swallow. I am emotionally having difficulty dealing with her family and medical care, although I say nothing while working of course. I am simply sad and...