caregiver

Hello I am new here so Im grateful to anyone who takes the time to respond. I am not yet a caregiver but will be here soon. My mom has ALS or PLS the doctors cant seem to decide. It is progressing wildly. She is in a wheelchair, has lost fine motor control in her hands and is having trouble...

Hello, I made a post a few months ago suspecting my Dad had ALS. Six months ago he was up walking, doing perfectly fine. It has been a steady decline to this point, and we have waded through rehab facilities and hospitals like they were hotels. My Dad was finally transferred to UAB Hospital...

I was diagnosed by a neurologist about 5 weeks ago after two EMGs and MRIs confirmed his suspicions. I'm not sure how long I've had this as I was in treatment for Lymphoma in 2014 and never fully recovered from Chemotherapy. Now that I have done some research, I think I was passing off some...

My mother was diagnosed last year. The majority of her body has succumbed to ALS. She can still speak, move her left arm, and her neck. Over the past few weeks, her mental state has changed. She has always been someone who speaks her mind, and in some cases - should not - but rarely to...

I feel as though I have started coming to terms with the loss of my beautiful Mother. Doing the ALS walk for Mothers Day meant so much to me. I was very emotional all day but it helped to be surrounded by people who understood. One of the the hardest parts of being the sole caregiver to my mom...

A wonderful, triumphant, inspiring story. She reminds me of the angel who married me 40 years ago. Except as portrayed in the movie, she's doesn't smile, tease and make us laugh like my sweetheart. [link to the movie "Breathe"]

Hello, I’m a caregiver and my husband has had three 15 - 20 minute episodes in which his teeth and arms and legs shake involuntarily. Has anyone experienced this? Thanks, Lisa

I want you to write a book. I would like as many of you as want to contribute 5+ pages about what you have learned about, ALS including tips and tricks, what you have learned about life living with a PALS, and life after your PALS has left. I would put all my energy that I have left into...

Hi all, First of all I would like to say sorry for posting this in here. Just don’t have many people to talk to and would like some helpful information. I am a 21 year old female. My mother was diagnosed with ALS in 2013 she was 52 years old. I was mums primary caregiver. It all started in...

Has anyone used a Hoyer lift sling to standing position?. We have a Hoyer lift, but sling is designed for sitting position. I am 280 pounds, and can "walk" with walker, but on days when caregiver is not here, my wife is not strong enough to get standing from shower chair. Once I am up, I can...