caregiver

Having a difficult day. More progression and the grief that goes with every loss is hard to deal with. I know I m depressed but I m still handling everything. My pals depends on me and I want to be strong for him, and be the caregiver he deserves. I m frightened and overwhelmed, it is all...

My Pals started a downward spiral 30 days ago. Could no longer talk, appetite diminished, slept 14-15 hours at night and often a long nap in the afternoon. I asked twice if she wanted our granddaughters to come decorate for Christmas and never got a response. I had them cone out anyway and she...

Unfortunately, I lost my husband, March 4,2016; after a 3 year battle with ALS. I was his full time caregiver. We made the mistake of waiting too long to try to get this device, he was not able to use it like we could have if we had it earlier. We used it maybe 4 times, and only a few minutes...

Not porn, sry! ;-) I searched the Forum and found no definitive answer to this: How do you manage your computer whilst in bed and sleeping? On Every90Minutes, they mention a wall mount setup that's 1) No longer available, and 2) Requires tweaks. I do have a rolling ConnectIT mount that...

Hello everyone. I am in a relationship with a beautiful man who happens to have als. We met when I began helping him as his caregiver. We have so much in common and just hit it off immediately. I know he is ill but I still see HIM the man and not the illness. I watched a documentary where the...

I apologize for the length of this post but I hope it might help others who have to take their PALS to the ER. We were in the hospital from Thursday morning until noon on Saturday. As I have posted previously the trip to the ER was recommended by our health care nurse based on a false oxygen...

Hello to all, I posted recently in the Newly Diagnosed forum about my mother. Since she was diagnosed in early August, she seems to be progressing quicker than I expected. In 8 weeks she has gone from slight slurring of words and a small limp, to basically unintelligible speech and the need...

We started range of motion exercises when my PALS became increasingly immobile. About 4 months ago. We stopped these during a 5 day stay at the hospital and did not fully resume the exercises do to discomfort from recovery and stiffness in the legs. We are now considering resuming these...

I have been waiting for our official diagnosis from and ALS specialist/neurologist to post and we got it last Thursday so here I am. My mom was her normal awesome self in April this year. In May we noticed she was slurring her words and she had a couple of falls while cleaning the house. In...

Hello, I am my mom's caregiver. She was diagnosed in 2012 and is now at this point fully disabled. We used to be able to communicate when she could use her eyes, but that was over a year ago. Unfortunately she can't close her left eye at all and she wears protective goggles and ointment 24/7...