caregiver

Those of you in Southern FL might want to check out a startup company called Room2Care, from either the ALS perspective, if you are flying solo, or other family needs. They match patients with rooms to caregivers, and caregivers with rooms to patients. One of the co-founders is a physician. It's...

Well my father has Als. My sister has been the current caregiver but she no longer wants to do it. A lot of issues there to be honest. She is now single and wants freedom. Well now I don't know my options. My father lives in Maine he is semi mobile and he mostly afraid of falling. He has very...

So I am over four years into my ALS journey, and I am trying to come up with a long term plan. I currently live in a ground floor suite underneath my sister and brother in law. She has been my main caregiver along with my mother so far, but my condition has deteriorated alot over the past year...

We are one week home on the vent .. We didn't have a option and it's what mom wanted .. But now doesn't trust it and it causes so much anxiety .. Mom is not sleeping .. Dad is not helping ( he has a bad heart and is on disability ) I have interviewed and hired a nighttime caregiver ( I sent her...

Hi All, didn't seem to quite be a category for this question, but this one seemed close enough. My mom was diagnosed with ALS in January, and we have made the decision to move her and my father to my area since its not really possible for me to move their way. Currently walking is become tough...

Hi Arizona PALs, I moved back to Tucson from NoCal last month. After my diagnosis in Nov 2014, I continued to work until I had to have a thyroid surgery in March and ended up in a rehab hospital after that - the surgery really weakened me. I had always planned to move back when I could no...

Hi friends - I just wanted to step out of the shadows and say hello. I am the wife & caregiver to Steve, who was diagnosed with ALS in February, 2011. He is now on hospice and has been given a two-month prognosis. This is my first venture into the forums - I don't know why I've avoided it, but...

My wife, 47, has had a diagnosis of Upper Motor Neuron Disease, along with dementia, and parkinsonism. As her caregiver for the last 18 months, I was stretched to the max. I had a heart attack 2weeks ago, and had to put my wife in a nursing home. During a family mtg. (at the nursing home) to...

Hi everyone. I feel like this sounds like a selfish question, but how does a caregiver/family member cope with what is happening? My dad was diagnosed 10/2014 and my parents and brother live in North Carolina. I fly down every 6-8 weeks to visit/go to clinics. My moods usually seem worse...

I would like to know what does your caregiver use when they are outside and the patient is in the house? There is times when I go outside to work in my garden and my wife is in the house and she needs my help, what would be the be the best devise to get so she could talk to me when I am outside?