caregiver

  1. P

    Interabled relationship advice

    Hello everyone. I am in a relationship with a beautiful man who happens to have als. We met when I began helping him as his caregiver. We have so much in common and just hit it off immediately. I know he is ill but I still see HIM the man and not the illness. I watched a documentary where the...
  2. Chincoteaguer

    Back home from hospital

    I apologize for the length of this post but I hope it might help others who have to take their PALS to the ER. We were in the hospital from Thursday morning until noon on Saturday. As I have posted previously the trip to the ER was recommended by our health care nurse based on a false oxygen...
  3. A

    Fast progression

    Hello to all, I posted recently in the Newly Diagnosed forum about my mother. Since she was diagnosed in early August, she seems to be progressing quicker than I expected. In 8 weeks she has gone from slight slurring of words and a small limp, to basically unintelligible speech and the need...
  4. Chincoteaguer

    Range of motion exercises

    We started range of motion exercises when my PALS became increasingly immobile. About 4 months ago. We stopped these during a 5 day stay at the hospital and did not fully resume the exercises do to discomfort from recovery and stiffness in the legs. We are now considering resuming these...
  5. K

    A question about a new diagnosis

    I have been waiting for our official diagnosis from and ALS specialist/neurologist to post and we got it last Thursday so here I am. My mom was her normal awesome self in April this year. In May we noticed she was slurring her words and she had a couple of falls while cleaning the house. In...
  6. J

    Need advice on tarsorrhaphy please

    Hello, I am my mom's caregiver. She was diagnosed in 2012 and is now at this point fully disabled. We used to be able to communicate when she could use her eyes, but that was over a year ago. Unfortunately she can't close her left eye at all and she wears protective goggles and ointment 24/7...
  7. L

    Panicking...how do I do this?

    Hello I am new here so Im grateful to anyone who takes the time to respond. I am not yet a caregiver but will be here soon. My mom has ALS or PLS the doctors cant seem to decide. It is progressing wildly. She is in a wheelchair, has lost fine motor control in her hands and is having trouble...
  8. F

    What to expect during late stages?

    Hello, I made a post a few months ago suspecting my Dad had ALS. Six months ago he was up walking, doing perfectly fine. It has been a steady decline to this point, and we have waded through rehab facilities and hospitals like they were hotels. My Dad was finally transferred to UAB Hospital...
  9. G

    Newly diagnosed

    I was diagnosed by a neurologist about 5 weeks ago after two EMGs and MRIs confirmed his suspicions. I'm not sure how long I've had this as I was in treatment for Lymphoma in 2014 and never fully recovered from Chemotherapy. Now that I have done some research, I think I was passing off some...
  10. T

    My mother's mental state... she is so cruel.

    My mother was diagnosed last year. The majority of her body has succumbed to ALS. She can still speak, move her left arm, and her neck. Over the past few weeks, her mental state has changed. She has always been someone who speaks her mind, and in some cases - should not - but rarely to...
Top