A story about falling ill in ALS, the devil´s disease, with reflections and criticism you can have as a physician after onset of ALS.
Author Ulf Ljungblad MD, PhD - August 2014
ALS is sometimes called the devil´s disease. It usually affects fully healthy often physically very active persons...
You charge way too much to join your club.....but Thanks for being here....We officially joined your ranks July 15, 2014
I'm Doug a CAL to my wife Pam.....we're OLD compared to many posting here.....Pam just turned 63.....she's been a legal secretary in Orlando "forever" .......we've been...
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Anyone see this or try it? Apparently Mass general thinks this is one of the more promising candidates.
Mexiletine - channeling ALS?
Posted by author Michelle Pflumm, Ph.D.
clock February 5, 2013
cortical hyperexcitability sodium channel ALS MND
Calming ALS nerves Mexiletine may help...
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Odd that we've not mentioned this since a year ago.
It appears That Genervon was quite pleased with the recent Phase 2a results, and the 'orphan drug' classification is, hopefully, hopeful! ;)
PRESS RELEASE
June 30, 2014, 6:01 a.m. EDT
Genervon Announces Biomarker Data from GALS-001 Clinical...
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In two days I have an appointment at the ALS clinic to have a EMG on my diaphragm. I am less than enthusiastic about having this procedure....but my doc seems to think that it is needed.
From all my research this is fairly current technology, only a few years old. They will determine if I am a...
It's been five months since my husband's diagnosis, and I thought I'd come to grips with it. Right. I barely made it out of the hospital in one piece today and I'm terrified that I'm going to break down in public and just not be able to stop crying.
We knew my sweetie has a vertebrate that...
Hello Everyone, my name is Sam.
I am an MFA candidate at the Academy of Art University in SF, CA. Currently I am engaged in a 2 year long thesis project on prosthetic design for debilitating disease. I have taken on this project because my father has MS and I think there is a lot of room to...
I tried to respond to you Joe, but the moderators seem to not want to let my post through. I have seen several neuros over the years but in all reality and in my opinion I think they are worthless. My main Neuros are Doctor Steven Scelsa at Beth Israel and Dr. Boylan at Mayo. I have not been to...
At this point Tim does not have bulbar involvement, so is able to speak clearly, and swallow with no problem. But over the last week I have noticed that he is starting to use his neck and shoulder muscles to take a breath to talk. He sleeps on pillows to make his breathing easier, and asks for...
Hello everyone,
I'm new here, currently waiting to see a neurologist next week to confirm a diagnosis.
I am worried that it could be ALS .... 3 months ago I took a substance called ibogaine which is a shamanic plant medicine that works to reset your cerebellar and nervous system (I did it for...
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