1. ShiftKicker

    For Canadians interested in Radicava

    The CADTH (independent advisory body Health Canada consulted with) has published its recommendations on Edaravone use in Canada based on their research and consultations with ALS patients, caregivers and other health professionals. From ALS Canada The report can be found here...
  2. K

    Still Looking for Canadians interested in Sharing their Experiences

    Hi there! My dad was diagnosed with ALS in 2016. His struggles with the Canadian Healthcare system have motivated me to do something to create change. So that he and others might be better cared for and supported. If you are a Canadian that has been diagnosed with ALS or a related condition...
  3. Tedstehr

    Canadian Edaravone Instructions - infusion

    I have watched my craigslist nurse (let's call him Craig) prepare and infuse my Edaravone for about 20 times now. And I know others are planning to get "under the table" infusions done too. So I will describe the procedure for those who may need this information. First, Craig lays down sterile...
  4. ShiftKicker

    Alternate for Neudexta?

    This was brought up in the thread re: B12 shots, and I didn't want to hijack the thread further. In that thread, we discovered 3 Canadians (myself, Trixi80 and Gorby) all seem to be seeing the same neuro- who is quite conservative in offering treatments and options. Neudexta was brought up...
  5. Vincent

    the best country in the world.

    Happy Canada Day to all my fellow Canadians. VIncent
  6. canmark

    End of life decisions

    Last fall, the CBC did a very interesting series on people making end-of-life decisions. It was called Last Right. Recently, this was in the news in Canada: Lawyers want Supreme Court to view man’s dying plea for assisted suicide law
  7. T

    working still?

    Evening all, Just wondering if: 1. Any CALS still working full time and if so how do you manage it all? 2. Any Canadians here? And if so do you work? Know how system works i.e. staying home to care for lived one full time and still pay the darn bills?! Thanks everyone! Amy
  8. John1

    Are any Canadians using the diaphragm pacer?

    I am at the point that my FVC (70%) is approaching minimum levels for implanting the diaphragm pacer (50%?). I have been following Dr. Onder's research from the outset. I know that the device was being trialed in BC a few years ago for ALS but don't know the outcome. Are any Canadians using the...
  9. E

    New to forum

    Hello, I have been reading posts for a few months without officially registering. Well today I decided to register and introduce myself and actively participate. :smile: I was officially diagnosed with ALS this past February at Sunnybrook in Toronto. I've spotted some fellow Canadians while...
  10. T

    To our northern families

    As you Canadians know, our military (the united states) acknowledges a link between service and als. Does your country have the same benefits programs? Were any of you in the military? If you would like to answer privatelyx you may pm me. Just curiouus. Toto