I was hoping that I had dermatomyositis but I knew that wasn't causing my weakness or muscle wasting. It was a pretty easy diagnosis for the neurologist even though I still had some muscle strength. My arm muscles were just hanging there. I avoided going to the doctor to hear the news but my...
arm
back
bed
breathing
breathing issues
canada
caregiver
death
denial
diagnose
family
financial
fingers
go away
insurance
life
love
muscle
muscle wasting
muscles
neurologist
paralyzed
scared
shower
stages
story
swallowing
swallowing issues
weakness
Hi folks,
I've read some of your posts, but this is my first time posting.
I'm currently caring for my mom, who has ALS. Feeling a bit lonely and isolated, so I'm reaching out online...
About mom:
She was diagnosed just over two years ago. She just turned 64 last week. She has limb-onset...
als
bed
canada
caregiver
confused
dad
diagnosed
diagnosis
early
eating
electric wheelchair
family
goodbye
health
immediately
increase
life
lonely
onset
speech
story
swallowing
walker
wanted
wheelchair
I live in Canada and with the winter coming I am having a hard time with staying warm in bed without being trapped. I'm waking up during the night and I can't move the blankets due to the weight and my lack of strength. I bought a silk blanket but it is not warm enough. I thought about maybe a...
Hi! I'm a 20 years old male living in Canada.
I'm a Korean, so I apologize in advance if my English is bad.
Starting several years ago, I've had occasional difficulty breathing along with some chest pain, that gradually built up to cause anxiety issues (hypochondriac). So I decided to go get...
hi all,
First post here, thanks in advance for any responses. I'll try to be succinct in my symptoms. I'm at the point where I feel like ALS is likely, but still hanging on to hope that it's something else. I'm 28, otherwise healthy.
First symptoms 4 months ago, while on vacation overseas. odd...
So Tim had his feeding tube put in 2 years ago as his breathing was deteriorating quickly in spite of the fact that he was still mobile. He had it changed to a low profile Mic Key which was great and just needed to be flushed with water to keep it open. On the odd time that I forgot to give...
als
back
bipap
book
breathing
canada
catheter
choke
cost
driving
feeding
feeding tube
hours
immediately
life
positioning
problem
reading
stupid
swallowing
voice
I was diagnosed with ALS over two years ago. I am still standing and doing most things on my own. The Department of Veterans Affairs Canada recognizes ALS as service associated, and they have been very helpful and financially supportive. The 90% of us that have the sporadic kind of this disease...