camp

  1. shelleynshaggy

    End of Summer Camp Out

    After much discussion with the other dads in the group I packed Jim and Mikayla up for a weekend daddy/daughter camping trip. One of the other fathers came and picked them up and agreed to drop them back off. They helped Jim set up his tent and kept an eye on both him and Mikayla. The...
  2. B

    If health care "pros" lived one day in a pALS' life...

    Maybe they would get off their a$$es and seriously consider the struggles pALS go through! I've just about given up on getting ANY help with ANYthing without having to scream and tear my hair out! It seems as if my husband is "snake-bit!" :evil: We've been w a i t i n g for the Words+...
  3. arkallen

    Back from the Brink

    The real D-Day, when it finally arrived, took me completely by surprise. With the spectre of inorganic causes still haunting me as it has for the past twenty days since leaving Melbourne hospital, I attended a six monthly Neurology appointment wondering how the local specialist would respond. I...
  4. irismarie

    shewees again

    I showed my son and DIL my shewee yeszterday and they were already familiar with them cos - get this! - when they go to the Glastonbury Music Festival, shewees and the wonderful absorbent bags that you can get with them, are given out at the entrance . They camp and use the urine bags -which...
  5. J

    caregiver issues

    My mom was diagnosed with ALS in May 2008. She has since lost all mobility except eye movement. She's on a feeding tube/vent/catheter. Up until this week everything was going well. The family as well as nurses were taking care of her. I definitely did my fair share of helping my mom because...
  6. E

    ALS? Anxiety? To the experienced: please help...

    I am seeking some assistance from the experienced in helping me determine what I am dealing with. My story: Dec 1: while at lunch got a right leg (butt to toes) soreness/ache that turned into a slight numbness/feeling and continues to this day. Sometimes can't tell if its there, sometimes...
  7. BarryG

    I Dream

    Here is a poem from the book "Do the Mountains Call Your Name?" by Paul Beland (ALS Canada - Incompatible Browser) who lived in Grande Cache, Alberta, about an hour and a half north of me, I Dream I used to think a hike, then I'd hike it I used to think a climb, then I'd climb it I used to...
  8. Y

    no idea leg pains could lead to ALS forum

    i'm a 52 yr old female. in the past 6 months i'm wakened every nite... sometimes 3 or 4 times with horrible, horrible shin pains & leg cramps. the last month it's worse... far worse. i am wakened from a deep sleep with such excruiating pain that i have to try to get out of bed to stand. when i...
  9. R

    Falling apart

    My mom has advanced ALS and I have learned that things can always get worse. I am not my mom's primary caregiver, in fact I don't do that much hands on stuff with her because I have a 3-year-old and a 9-month-old. I feed her when I'm around, buy her foods and drinks she likes, take care of phone...
  10. BethU

    Newsweek article about ALS

    I don't know if anyone has posted about this, but I'll post this in case they haven't. In the current (November 10) issue of Newsweek, the feature "My Turn" is a first-person account by a PALS who was recently diagnosed with ALS and is trying to do something (fundraising) about it. It's on page...
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