cals

  1. Buckhorn

    Nearly 6 months S/P Dave's death

    Just checking in to say hello to all the brave warriors out there, both PALS & CALS. Jan. 4th will mark 6 months since Dave's passing. I've been doing remarkably o.k. I've been pretty successful on maintaining my focus on the positive and that The Beast took over our lives later in ife and that...
  2. BK2011

    Merry Christmas

    To all PALS & CALS, Leaving for my daughters shortly and won’t be online much for a couple days. Wish all of you a very Merry Christmas and a Happy New Year. God Bless you all. PALS - Enjoy what you can and don’t sweat what you can’t control. I’m going to enjoy watching my grandkids open...
  3. P

    Scared this Holiday Season

    First, I want to say that I have been to this community off and on for the past week or so and have seen how incredibe you PALS and CALS really are. Thank you for doing something you certainly don’t have to do. This greatly helps people like me looking for some possible insight into their...
    • Passive4356
    • Thread
    • ability advice anxiety back book cals children cold emg eyes fingers holiday life muscle pain paresthesia running scared stress symptoms test testing twitches twitching weakness weight loss
    • Replies: 3
    • Forum: Could this be ALS?
  4. G

    Bulbar issues, fatigue

    Hello! First of all, I am really grateful for all the help of you, PALS and CALS, provide to us that are still lost in our medical conditions, and I respect you immensely for that. In August, my first symptomes occured. After a spasm that woke me up, my middle finger on my right foot started...
    • GreyWanderer
    • Thread
    • abdomen anxiety arm brain breathing bulbar cals diagnosed emg fatigue foot headache improvement issues lyme neurologist pressure problems scared speech support swallow tests tongue treatment twitches wrong
    • Replies: 4
    • Forum: Could this be ALS?
  5. K

    Range of Motion Exercises-Advice Please?

    Hello, Something that's really worrying me is range of motion exercises. We went months with my 87 year old mother being bed-bound before I realized we needed to push for a PT to asses. We got a simple group of exercises last month, so that's good (I hope!). I do have some ROM exercises I...
  6. Buckhorn

    Just a bit over 4 month's in S/P

    Hi all. Just checking in. Nov. 4th was the 4 month anniversary of Dave's passing. I miss him every single day, but, I will admit ....... less so as time goes by. I think of him, or of phrases he would say, or things I knew he would want to talk about, multiple times per day. I have conversations...
    • Buckhorn
    • Thread
    • back brother cals coping death family hip life planning sad timeline
    • Replies: 2
    • Forum: Past caregivers
  7. N

    lurking CALS

    Hi, I'm Nikki. My husband was diagnosed with ALS last December. I have spent the last year lurking on this site and finally feel like I am getting to the point where I may want to start asking questions. My husband Colin is 51. I am 36 and I have a 9 and 11 year old whom he is stepdad to. He has...
    • nkrohan
    • Thread
    • als cals clinic diagnosed helpful questions radicava tongue
    • Replies: 9
    • Forum: Newly diagnosed
  8. P

    support for children and grandchildren of PALS

    I was personally very grateful to see a camp offerred to the minor children and grandchildren of PALS. As a CALS I was overwhelmed with gratitude when I saw the notice. Just wonderful, I thought, I wept and sent the notice on to my daughters in law who might want to participate with our...
    • pinky
    • Thread
    • cals camp children family feeding grandchildren of pals heart ice onset pals respiratory respiratory onset support tube feeding ventilator
    • Replies: 4
    • Forum: Off topic everything
  9. J

    Confused, looking for clarity and perspective

    Hello everyone, I Am brand new to this forum but I would like to take a minute to say thank you all so much for what you are doing to provide support for PALS, CALS and people like myself who are seeking knowledge and peace of mind. I cannot say that I understand all that you're going through...
    • jonnikray
    • Thread
    • back cals confused early early symptoms fear finger foot go away information medical muscles neurologist pain reading support symptoms symptoms of als thumb twitching video wanted website wrist
    • Replies: 5
    • Forum: Could this be ALS?
  10. affected

    Cognitive and Behavioural effects higher than we used to be told

    I found this article helpful to me. For CALS, dealing with cognitive and behavioural changes is so very difficult, especially as the PALS does not recognise that changes are happening. To see research is revealing the incidence of changes is far higher than we were being told 10 and even just...
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