cals

  1. KatieNBoyd

    Things that need to be done

    I have just spent over an hour and a half on the phone with the credit card company as well as several companies discussing autopayments on charges on my PALS credit card. Back in March while we were at Mayo in Rochester. My PALS says to me over breakfast (some of you will remember), "Wow the...
  2. B

    PALS must be CALM!

    hello all, i have limb onset that has now progressed to where even a little walking is very tough. my voice is weakening and i am laughing and crying too much. i take herbal medicine for the crying. i also see a therapist once a week and am making a great effort at self-caring and fun projects...
  3. scaredwifetx

    Dallas/Fort Worth PALS and CALS

    The ALS walk for Dallas/Fort Worth is coming soon. Sunday 09/25 at Trinity Park in Fort Worth. We have a team walking that is now 40 strong. Steve is even agreeing to attend and is going to take his chair for a whirl. An important step for him. We have family, co-workers and friends attending...
  4. V

    Fearful of ALS due to shoulder symptoms.

    Hello everyone. Thank you in advance to any PALS who may post upon this thread. I understand that it takes a great effort, and I am hugely appreciative. (Thank you to any CALS as well, your work is amazing.) I'm a 21 year old male, and I understand that my chances of getting ALS are 0.002%...
  5. G

    Unusual onset pattern

    To all the CALS and PALS, I have been on this site now for three months. I have been to a PCP, neurologist, and neuromuscular specialist. I have had clinical exams and two clean/normal EMGs. I have had every test run on me, and yet, there has been no diagnosis. Since June, I have had...
  6. Lkaibel

    ALS Sucks Even Now

    First, let me say at the moment we are blessed and have little to complain about. Brian wears orthodics and does not walk more than say about a block without rest. Standing is hard on him for sure. He uses a bath chair to do things like wash his hair in the shower because he gets "rubbery" legs...
  7. Nikki J

    Another caregiver forum

    Of course we are the best but this is an open forum. I happened across a caregiver only private forum on the brigance brigade foundation website. Look under Chanda's corner. Chanda is OJ's wife and they are great people. ( I have not looked at the forum it is only for current primary CALS)
  8. chally

    Grand Tetons/ yellowstone

    WOW! Don't know how many times I said that but it sure was a lot! This area of the US is spectacular! My brother one year older was my cals for the trip and with OJT he performed fantastic. Our host and general manager of Jackson Lodge was Alex Klien And his associates , they did a fantastic...
  9. Duker52

    PALS to CALS Alert Device

    Is anyone aware of some type of medic alert wrist band which functions like a Medic Alert, but instead of notifying medical personnel it would alert the person wearing the matching band? A PALS to CALS alert device. I have lost my ability to speak and fear if I were to fall I can't call out to...
  10. F

    CALS and PALS Question

    Can my daughter be paid for taking care of me? She does not work, and I need help. I just got approval for Medicare, and I have secondary insurance through work (I am retired) too. I have long term care insurance, but they will not cover a family member. Hugs, Deb
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