bulbar

  1. J

    Getting confusing info about ALS...please help

    Hello, I'm a 38 year old female. About a month ago I started experiencing body-wide twitching. Most of it is located in my back, but almost every part of my body has experienced some twitching. I also have a great deal of body-wide muscle pain, not cramping but just constant soreness (like I've...
    • Jadzy
    • Thread
    • als als? arm back bulbar bulbar onset choke clinical clonus confused confusing cramping early emg fasciculation female food help! info muscle onset pain please help problems ring finger slurred speech speech swallowing symptoms test tongue twitching voice weakness worried worry wrist
    • Replies: 14
    • Forum: Could this be ALS?
  2. S

    Moderate Dysphagia found in Swallow Study, plus tongue aches

    Hello all, thank you for your community. I have been seeking some form of diagnosis for a year or so now after beginning a variety of neuro type symptoms last Fall... which were initially numbness and tingling (I know, not ALS), which morphed into body wide twitches (worries began here)... which...
    • sjh5gg
    • Thread
    • ache age als back bfs bulbar bulbar als bulbar onset clinical confusing death diagnosis dysphagia early emg fatigue fingers mnd onset reflex research scared slurred speech speech swallow swallowing swallowing issues symptom symptoms tongue twitches worries
    • Replies: 7
    • Forum: Could this be ALS?
  3. M

    Salivary Glands Botox Shot

    I am Bulbar Onset ALS and I decided to get the Botox shots in my salivary glands to help with the constant drooling. 2 days later, I could not swallow at all. I called my ALS doc and they set me up for an emergency feeding tube. 2 days after that I was in the hospital with pneumonia. Finally...
  4. C

    Newly Diagnosed with Bulbar

    a woman I have been caring for was recently diagnosed with bulbar ALS.... she is in the advanced stages... she has lost sooo much weight and has a lot of difficulty swallowing and talking at this point. Can anyone please give me any tips on caring for her. pls any tips at all would be so...
  5. 3

    Bulbar symptoms?

    Hello all. For the past almost 3 months I've been experiencing a strange vocal condition. I cannot sing without my voice cracking. I struggle with controlling the volume of my voice. My voice feels flat and my pitch is out of wack. Vowels are especially hard to pronounce. Overall, it just feels...
    • 35football35
    • Thread
    • als bulbar bulbar symptoms speech symptoms symptoms? test trip voice wrong young
    • Replies: 2
    • Forum: Could this be ALS?
  6. worrieddaughter77

    Does slow speech precedes slurred speech and disphagia and other bulbar symptoms?

    My dad was diagnosed with "definitely MND, probably ALS" with bulbar onset last week. As I learn more about the disease, I also look back to see if I remember when my dad's first symptoms started. It was 9 months ago that he started slurring some consonants for the first time. But it was...
  7. J

    Bulbar issues??

    Ok. For the last 3 months I have noticed something different with my speech. I seem to have to try harder to enunciate words correctly. Before this I never even paid attention. I also have noticed my jaw seems loose. When I lay down my jaw flops to the direction I'm laying and it's very hard to...
    • Josh101
    • Thread
    • bulbar issues mri problems questions scared slurring words speech tests tongue twitching worried
    • Replies: 10
    • Forum: Could this be ALS?
  8. S

    Respiratory onset?

    Hello, I am 18 years old from India. My symptom is breathing problem. When I lie down I don't inhale properly, like shallow breathing because of this I can't fall asleep. I feel anxious. Sometimes I feel my head isn't getting blood. My lungs feel weak, I run out of breath while talking easily. I...
    • Sandlolol
    • Thread
    • 18 years old age als? atrophy breathing bulbar fingers friend onset possible a problem questions respiratory respiratory onset shaking symptom symptoms tremor twitching weakness worried
    • Replies: 15
    • Forum: Could this be ALS?
  9. N

    My Dad has progressive bulbar Palsy

    Hi everyone, I wrote a couple of posts back in May after Dad's initial diagnosis but havent wrote anything since. Im having a bad day today so im hoping it might help. As I said my 63 year old Dad was diagnosed with MND in May but its only recently that it has been confirmed that he has...
    • Niamh
    • Thread
    • back bipap breathing brother bulbar bulbar pals dad diagnosed diagnosis eating family food life love mnd morphine night onset pbp pressure speech supplements swallow symptoms travel
    • Replies: 1
    • Forum: Progressive bulbar palsy
  10. C

    My dad

    Today my dad, his name is Lloyd, admitted that he could no longer use his hands. We have been struggling with this since December. First the right hand now the left. The right hand took about 6-8 months to be completely unusuable. However, the left hand was completely fine until 2 weeks ago...
    • ctollar
    • Thread
    • advice als breathing bulbar bulbar onset dad hospice neurologist onset progression
    • Replies: 2
    • Forum: Current caregivers
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