bulbar

  1. K

    Extreme dysphagia, diagnosed with "unspecified autoimmune", would like some input

    Extreme dysphagia, diagnosed with "unspecified autoimmune", would like some input I have done the math, and I'm a statistician - getting diagnosed with ALS is extremely rare. For someone like me, younger than 30 (I am 29), it's even more rare. On top of that, "bulbar onset ALS" is an additional...
  2. WendyWooG

    fals or sporadic?

    hi i have als, limb onset age at start of symptoms 47. when i was diagnosed there was no hint of any family history. Not good but at least i wasn't worried about my kids. today i have had the devastating news that my mum has been diagnosed with bulbar onset at age 75. the doctor has...
  3. L

    Does my mom have ALS?

    Hi ! I am new here and I wanted to know if my mom has ALS... Here is the history: My mom frequently woke up choking...some time passed and it never happens again. well, 1 year, I think, later, she starts to stumble in the streets with her left foot. later she started to limp too...she had...
  4. A

    Concerned

    Hi everyone, firstly to describe when this all started I took an antibiotic called ciproflaxin for a persistent headache that my doc believed was sinisitis. Since then I found out this was a bad decision as I had no tests to confirm it and this drug is only used in life or death circumstances...
  5. C

    Is Yawning an Onset Symptom?

    Hello, All. I'm a 21 Year old Male and Recently I noticed that I yawn Excessively. I do not feel tired nor do it to try to get air. Also I've been hearing something weird coming from my throat like a squeaky sound. Do these relate to symptoms of ALS bulbar and should I be concerned? I can...
  6. H

    Humbly asking for experiential input

    Hello I am mid 40s yo male with a background in the medical field. I would like to ask anyone if their symptoms started like mine and any recourse I would have pending. 4 months ago my legs started be tired and heavy proximal but wide fluctuations. I am a very anxious person and als fears came...
  7. T

    Reporting back from doctor

    Hey guys, I recently found atrophy in my left leg that was contributing to my weakness and slight limp. The quad is smaller than the right one and it's decently noticeable. I haven't tripped or fallen or lost my balance in any way and have no fasics. No Babinski sign and no clonus, my reflexes...
  8. G

    Just some questions

    Hi everybody I was diagnosed with motor neuron disease about ten years ago, and since, I’ve been told I don’t have motor neuron disease, and I’ve also been told that I may have a neuropathy, or some form of limb girdle muscular dystrophy. I’ll try to make this pithy, but it’s a long story, if...
  9. M

    Bulbar onset - Internal tremor

    For about a year prior to being diagnosed i reported internal tremors while laying down. It totally confused the neurologist. Later on they found fasciculations in my upper back during emg. I guess i wasn’t describing them accurately. Seems like the emg in bulbar onset is more of a challenge...
  10. J

    Getting confusing info about ALS...please help

    Hello, I'm a 38 year old female. About a month ago I started experiencing body-wide twitching. Most of it is located in my back, but almost every part of my body has experienced some twitching. I also have a great deal of body-wide muscle pain, not cramping but just constant soreness (like I've...
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