bulbar als

  1. J

    88 year old Mom recently diagnosed...please help!

    My Mom will be 89 in November. She was always very busy, doing her own cooking, cleaning, etc. She got out with friends a couple of times each week. She was just diagnosed in July with Bulbar ALS and is having trouble speaking clearly. Is there anyone out there who was diagnosed at this later...
    • jmr1956
    • Thread
    • ability age als bulbar bulbar als clinic dad diagnosed frustrated health help! life please help support
    • Replies: 4
    • Forum: Newly diagnosed
  2. S

    19 y/o male - are these symptoms consistent with bulabr ALS?

    I'm a 19 year old male worried about bulbar ALS, to the point where I can't enjoy my life anymore. I've been to my primary doctor about it but not a neurologist yet. He didn't seem to be worried about it. I've had an MRI and that was normal. I've been having sleep apnea for almost a year and...
    • scdsco
    • Thread
    • age als als fear als? anxiety back brain bulbar bulbar als family fear food life mri muscles neurologist night problems sleep slurred speech slurring words spasms speech stress swallow swallowing symptom symptoms tests tongue update worried young
    • Replies: 9
    • Forum: Could this be ALS?
  3. T

    Poems

    My name is Ron Schaffer ,.. id like to share some poems I wrote about als and some friends that passed. .hope u like them.. This Thing I often think of walking Through fields of grass and streams These things i took for granted Now they're just a dream Friends I used to have Over time...
  4. M

    Bulbar als?

    Reading through this forum I do feel a bit silly posting this, but thank you for anyone taking out any time to respond, it means more than you know. For about a month and a half I've been having issues swallowing. I swallow, and the food stops like partway down my throat, or at least some of it...
    • Mnh26
    • Thread
    • age als als? anxiety back bulbar bulbar als choking confused coughing dihals eating family family history food ice morale reading saliva scared speech stupid swallowing swallowing issues symptoms tongue twitching
    • Replies: 1
    • Forum: Could this be ALS?
  5. V

    could this be bulbar als?

    hey here! i'm new to this forum but i've been reading it for a long time.. now my concern is about my mother she has been diagnosed with fibromyalgia she has all the pains and the symptoms but a neurologist also had suspected als (that happenned 3 years ago) because she had absence of gag reflex...
    • vdus
    • Thread
    • als als? bulbar bulbar als diagnosed fibromyalgia neurologist reading reflex slurred speech speech symptoms voice weakness
    • Replies: 3
    • Forum: Could this be ALS?
  6. J

    20 years old almost certain of having als.

    Hi, I wrote here one month ago about my symptoms and since then I tried to stay off this forum but my terrible problems and symptoms are not letting me to do so. The most concerning symptoms are : - Slower talking on and off : Few days I am pronouncing words slower and less precisely, it takes...
    • JacobS157
    • Thread
    • advice als atrophy breathing bulbar bulbar als burning exhaustion fasciculations ice muscle muscle burning pain phlegm problems saliva symptoms tongue tremor worried young
    • Replies: 2
    • Forum: Could this be ALS?
  7. jethro

    Apetite and nonbulbar ALS

    after taking supplements (D, E, B, A, coq10, L serine, resveratol, lithium orotate, magtein, selen, kreatine, ALCAR, hydrolized proteine shakers, bcaa, probiotics etcetc) have no chance to eat normal. therefore i stopped to go to toilet. at least, not often as i used to do. just urgent pee when...
  8. S

    Bulbar ALS?

    Hi people. I'm from Spain, my name is Carlos and I'm 25 years old. I'm worried because this last year i started to experience some symptoms like arthritis, tinnitus, vertigo, cognitive problems, fasciculations over the body, muscle cramps, dipsnea etc... and my worts symptom my tongue... it's...
    • Spain26lm
    • Thread
    • als als? bulbar bulbar als cramps crying diagnosed fasciculations lyme muscle problems respiratory symptoms tongue twitching worried
    • Replies: 1
    • Forum: Could this be ALS?
  9. S

    Bulbar ALS?

    Alright so about two months ago I opened a post stating that my speech/sudden lisp has been bothering me. (I couldnt figure out how to re-open the thread so im sorry for posting twice) And honestly it has gotten worse, many s and z’s now come out as a whistle and i have to talk slower to make...
    • SNicole
    • Thread
    • als als? back bulbar bulbar als cold dad emg family female frustrated ice speech tongue twitch
    • Replies: 10
    • Forum: Could this be ALS?
  10. N

    my dad is tortured with saliva/mucus - need advice...

    He wakes up in the middle of the night choking on saliva and nothing helps. I mean - the only thing he tries is cough it out, and of course this doesn't help. His doctor - an anestesiologist with no experience with bulbar ALS, doesn't have any advice. My dad suffers so much he now often says he...
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