bucket challenge

  1. R

    Updating since my thread was closed

    So I have stayed away from here for awhile. I've glanced here and there but primarily have stayed away. The only thing that has kept me positive whatsoever are the responses I've gotten on here and the doctors telling me its not ALS. Every doctor that has told me no, I have left there happy and...
  2. sleepy

    Barnaby Joyce agrees to do ice bucket challenge

    Mostly of interest to Aussies... He agreed on the record when asked by our reporter Living with, not dying from MND | The Armidale Express
  3. A

    Research Progress

    Please don't get the bashing stick after me. I guess I just need to vent. So how much progress have we made since the first case of ALS was diagnosed? Let's see Lou died in 1941. He lasted 2 years post onset. Wow what progress we have made. Seems all the other illnesses have made advancements...
  4. konagirl

    Hype or not?

    We are new to this world, as you all were at one point. I am embarrassed to say, but before the letters ALS were mentioned to us by a neurosurgeon, and I began researching, I had never really even heard of it other than the ice bucket challenge. Now, I see articles all the time, hear news...
  5. W

    20 Years Old. Worried.

    Ever since I saw the ice bucket challenge on YouTube I've been traumatized about the disease. My mind would tell me that every time I would feel weak or have trouble doing something, I would be coming down with early symptoms for ALS. I'm 20 years old, on a tennis scholarship in the states and...
  6. KimT

    Things you'd like to say to people, professionals, and relatives about ALS

    As I posted a lengthy informative status on FB today is was mainly to inform distant friends and family of my diagnosis and let them know about ALSA. I was trying to be informative but couldn't help posting some of the things that hurt me along the way. Things like being called "the ALS" at a...
  7. C

    2 year later...

    Hello old friends. Im atm laying in my bed. The feets, calves, the tounge have clinical proved fibrillations and fasciculation. Some stiffness/burning legs, but when i think of you guys, it cant even be compared. What started nearly 3 year ago with a numb leg and weak hand was not ALS. It was...
  8. mpnatx

    Lack of Knowledge

    My brother has been in intensive care for the past week on life support. I spent the day with him yesterday and one of the nurses struck up a conversation with me. She asked me if I was a relative and I told her he is my brother. She then told me she's been a nurse for 24 years. Then she asked...
  9. krnNdug

    IBC with the Diamondbacks

    I was lucky enough to be asked to be a part of the AZ Diamondbacks Ice Bucket Challenge with JJ Putz and Luis "Gonzo" Gonzalez. Below is the official MLB version which is ok, but I like the one from my wife where I sort of fall into the pool. My legs are almost done and my arms are fair so that...
  10. Nikki J

    Ice Bucket II

    As you know August has been designated as a time for another Ice Bucket challenge. It would be fabulous if last year was repeated but unlikely However today one of the news stations was preparing theirs which made me happy I also just got an email from the Mass General cure ALS fund. They...
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