brother

  1. C

    Rambling

    Ok...so there is soo much to discuss but I don't know where to begin...... So I will do what any teacher does and create a list.... 1. My dad is going down hill faster than anyone thought... 2. I am tired...exhausted is more the word... 3. Yes, I am on meds to help 4. My sister is going to...
  2. Erika

    One year ago this crazy ride began....thank you for all the information and support!

    My mom was diagnosed one year ago today. So much has happened and yet, I remember those days leading up to the day and "the" day like it was yesterday.* I had already been told it was likely ALS a week prior, but I only told my parents we were being sent to another doctor who knew more about...
  3. starente15

    Gift idea for PALS and CALS

    Hi everyone, When my dad was sick, we met a couple that lived near my parents and the husband also had ALS. We became friends with them, meeting for lunch and dinner and my mother and brother have stayed in touch (they all live in North Carolina). My brother will drop by to bring donuts and...
  4. J

    Tobii dynavox i-12+ for sale

    Used only three months, Windows 7 operating system. Internet ready for email, FB, Skype and web browsing. Includes stand, power cord, carrying case and keyboard. Tobii tech support is willing to assist you in setting up this system for you. This was my brother's voice and connection to the world...
  5. D

    Very Aggressive ALS

    My 70 year old brother in law went from having drop foot to being on a ventilator in about three months! He had been seeing doctors during the progression, but ALS wasn't diagnosed until late April. After three weeks in ICU, he was moved to an acute care hospital where has spent two weeks...
  6. A

    Brother passed of ALS in 2006 and I have twitches

    Hello, this is my first post in the forum. My thanks to all of you for taking time to read and/or respond to my post. My brother was in the civil engineering unit of the military and was exposed to 4 1/2 tons of urea without proper protective gear. He began experiencing ALS symptoms 1.5 weeks...
  7. H

    Paying for home health assistance

    I'm just curious as to how others have handled home healthcare in the last stages of ALS. My sister receives Hospice care, but they only come out 3 times a week to bathe her, and her needs continue to increase, so Hospice told my brother-in-law that he must hire home healthcare providers for at...
  8. T

    Unable to Stay Home Alone

    My Mom has ALS and recently she is no longer able to stay home alone. My brother was in exams and then has finished the year at university, so he has been home most of the time. However, he will be starting a summer job in July and I don't know what we will do once he starts. We currently have...
  9. rose

    A new book written by the relative of a PALS

    Hi everyone :) I'm posting this here in the General section, rather than in the PEG related area, because I want everyone to see it. Whether or not you, or your PALS have a tube, or plan to have a tube, I think it will interest you. The woman who wrote this recipe book lost her...
  10. bkite

    Great truths that little children have learned:

    Here a dose of humor for today. 1) No matter how hard you try, you can't baptize cats.. 2) When your Mom is mad at your Dad, don't let her brush your hair. 3) If your sister hits you, don't hit her back. They always Catch the second person. 4) Never ask your 3-year old brother to hold a...
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