brother

Good afternoon, My father was diagnosed with ALS on October 6, 2017. The critical care neurologist said he was about 16-18 month into the progression of the disease and gave him about 8 months. In retrospect, we feel that he was probably more like 2-3 years into the disease. He passed away...

Hi Everyone, I lost my beautiful little brother on September 12, 2017. He was 47 years old with 2 young children. i knew I would miss his presence but never imagined this much. I knew what the outcome of ALS was yet still feel so unprepared. My mind keeps going back to those last few...

My mom has been sleeping most of the day since september 15 after a crisis with secretions and saliva where we used the coughing assist. She was able to stay awake for about the time when my brother came to visit about 10 days ago. :) But every day after that, its harder and harder for her to...

Hi everyone - I just joined today. Don't even know if I'm posting in the correct forum? Anyway, we're in the UK. My brother was just diagnosed in late April/early May this year with MND. This has progressed really swiftly and he now uses a wheelchair. He's been living at the other end of...

Hi everyone, I wrote a couple of posts back in May after Dad's initial diagnosis but havent wrote anything since. Im having a bad day today so im hoping it might help. As I said my 63 year old Dad was diagnosed with MND in May but its only recently that it has been confirmed that he has...

Hope I'm posting in appropriate forum. As previously posted, my twin brother was diagnosed w/ >90% certainty at Duke w/ ALS. He's had drop foot, weakness, leg, abdominal, throat, neck cramps and significant atrophy. He had a full MRI ordered by another specialist on the 9/18. Follow up on 10/3...

I registered-joined this forum today after researching several other sites because I felt that it was genuine and informative. My 57 year old twin brother was recently diagnosed w/ ALS at Duke University. He was told that the degree of certainty is >90%. He had an appt. in Knoxville w/ a...

My paternal Grandmother died from ALS when she was about 59. Her son was also diagnosed with ALS in his seventies but died from a stroke. My dad died at 83 with some form of dementia. My brother died last year from ALS at 60. As far as I know there has not been any genetic testing because of the...

Hi! Please be kind to me, I'm scared and I'm trying to receive help from our local hospital but they won't do much. So lately I've been having some difficulties with pronouncing some consonants, for example three days in a row I've hade problems with saying words with L and R. I was saying the...

Hello, I am new to this forum. I have been reading a lot of the threads and it seems like all of us CALS are dealing with pretty much the same things. I am the main caretaker for my mother, Audrey. My brother and I moved in with her after my father passed away a little over a year ago. Up...