1. T

    Is this the end??

    Hi - My name is Michelle and my sister was diagnosed with ALS April 2015. She seems to have got it pretty bad and drawn out. At first it was just her tripping a lot, then she would just fall and couldn't get up, couldn't get off the toilet or out of bed without help. As it got worst and worst...
  2. C

    Help with hands

    Hi. My brother is unable to open his hands and stretch his fingers. Are there any braces or gloves on the market that might be helpful? Would arthritis gloves help?
  3. S

    Brother diagnosed last week

    My younger brother was just diagnosed last week after having seen several physicians to rule out stroke, cancer, etc. The neurologist he first saw detected nerve damage but didn't give him any additional referral or information. He was eventually referred to another neurologist in Iowa City...
  4. B

    Best bidet toilet seat?

    Ever since I've had that experience in Tokyo, I've always wanted one. Simply because it makes everything easier when I have my 'toilet business'. My brother is diagnosed with ALS and he's on wheelchair ever since and I think this would make it easier for him as well. I came across this article...
  5. L

    Mom diagnosed 3 days ago with ALS. Great aunt died 2 years ago from ALS. I feel lost

    I'll just jump right in... 4 years ago my great aunt was diagnosed with ALS. She passed 2 years ago at the age of 76. Last year my mom (50 years old now) had a TIA stroke which was followed by a lot of problems the doctors couldn't figure out, including she can't lift her arms up to her shoulder...
  6. worrieddaughter77

    Some updates and decisions

    My dad is declining very fast. As new changes happening I would like to ask you for an advice/comments on the following points: Fatigue: My dad is very weak. He almost can't walk or stand up from a chair anymore. Taking him to the Dr or clinic is such a draining task on him. Just getting an...
  7. S

    “Make-a-wish” organizations for those w ALS?

    Hi! I’m new to this forum - my brother-in-law was diagnosed summer 2017. I’m looking in to organizations which grant wishes to adults with ALS. I’d love to help him and my sister take their family to Disney while it’s still feasible. He can currently still walk but is weakening and has breathing...
  8. KatieNBoyd

    Getting through the days

    I was looking back over the posts I had made a year ago. It seems like yesterday but at the same time it feels like forever. Next month will be one year. I am doing better today than I was say about a month ago. Weird things with family and friends continue to happen in particular with Jon’s...
  9. B

    My husband cried today

    For the first time since his diagnosis in June, my husband broke down. He has rapidly lost his ability to speak, and he was trying to tell me something that I just couldn't grasp. He tried to write it down but could only write one word that made no sense to me at all. He can't put his...
  10. L


    A man in Phoenix calls his son in New York the day before Thanksgiving and says, "I hate to ruin your day, but I have to tell you that your mother and I are divorcing; forty-five years of misery is enough" "Pop, what are you talking about?" the son screams. "We can't stand the sight of each...