Hello, My brother is 67 and has been so active till the last year. He had back problems and some surgery and that helped his back pain. However, He still swings his hp when he walks, and said it was because of a paralyzed big toe. Myself and his Finance have been trying to get him to go to a...
Hello I am new to this please bear with me. First of all my prayers go out to all those directly and indirectly affected by ALS. Thank you all for your support and encouragement on this site. I had never heard of ALS until my brother was diagnosed a few months ago. We are seeking any...
Hi everyone. I feel like this sounds like a selfish question, but how does a caregiver/family member cope with what is happening? My dad was diagnosed 10/2014 and my parents and brother live in North Carolina. I fly down every 6-8 weeks to visit/go to clinics.
My moods usually seem worse...
Has anyone out there had any dental devices to help with biting tongue, cheeks and lips? Both my brother-in-laws are dentists but have no experience with this. I have atrophy on the left side of my face and jaw muscles. My bite is off now and I notice when laying on my side, my lower jaw will...
My life as of the past 2 years has been unbelievably bad. I am 24 years old.
I met full blood brother who was put up for adoption as a child, and then he overdosed and died 2 months later.
I went to a very loud concert, and obtained a very intrusive case of chronic Tinnitus that makes sleeping...
Hi everyone ....I have read all of your posts and it is heartbreaking...I wouldn't wish this disease on my worse enemy..here is some background on me. I am a 37 year old female with a history of familial ALS. My grandfather, aunt and an uncle have passed and most recently my father in November...
hi friends,
I am feeling sad and nervous.
My brother and I have an appointment at a funeral home this afternooon.
It will feel good to have that taken care of, but what an awful harsh slap in the face of reality.
Prayers, please.
Cheryl
Hello all. As I have let you know, I am seeing a neurologist in Sydney, tomorrow! We travelled from Geraldton to Perth yesterday and Perth to Sydney today. My brother Allan picked us up from the airport...I was concerned after so long I may not recognise him but other than slightly more grey...
Hello my friends,
Well, I did it! I went on the cruise with my family and Hubby stayed home with his brother for 9 days.
It was an incredible get away from the monster. And much needed quality time with my 2 boys. I felt like me again for the first time in a really long time.
So glad I went...