Hi Everybody,
I only posted a few times in the Newly Diagnosed section. And I find it very difficult to post anything... My dad has been diagnosed in November. He's in Europe, I'm in the US.
Where he is, healthcare really sucks, and I find myself asking questions on different forums, or taking...
Today marks the 1 year anniversary of my diagnosis, definitely not a feeling of celebration. I am posting this because of all the support I was given by the community here during that troubled time, and I am eternally grateful and forever in your debt. I do find myself consciously avoiding...
Hi everyone,
This is my first time posting here so please be patient with me. My mom has been going through some problems that started back in August (5 months now). We have been to see a neurologist who is getting ready to make the final diagnosis, but we are not sure that this is als (he is...
als
arm
arm weakness
back
brain
breathingbreathingproblems
diagnosis
emg
fingers
help!
hyperreflexia
lift
lyme
mri
neurologist
possible als
progression
shoulder
speech
symptoms
tests
unsure
walker
wanted
weakness
wheelchair
So i promised myself I would not post here again but I'm really scared about my breathing issues.
So I have widespread fasciculations and breathing problems for 4 months now.
I can't take a deep breath and feel short of breath after exercise.
I don't have stomach and I feel bloated but I don't...
Hi. I have been on here before and have been experiencing symptoms for one year now.24 hour calf fasiculations,and ankle and foot weakness primarily.
I went from a BFS diagnosis by the best Uk neurologists to 'sensory-motor-autonomic polyneuropathy'.
This was after a recent EMG showing acute...
age
als
ankle
anxiety
bfs
breathingbreathingproblems
denervation
diagnosed
diagnosis
early
emg
foot
mnd
muscle
night
problems
questions
symptoms
weakness
wrong
Sorry, not sure why the last thread was closed. I don't think I mentioned my swallowing issues along with breathing problems they are pretty concerning. It's got to a point where swallowing water is the hardest it takes forever to go down as just sits there in my throat same with food. Is this...
Okay firstly I am sorry to whine in here, especially when alot of you are fighting immense battles and im sure it can be easy to lose patience with someone like me. I, like many posting in this section have spent hours trailing the net only to be lead to this site because of my symptoms.
I...
anxiety
back
bfs
breathingbreathingproblems
early
fear
foot
health
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lead
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muscle twitch
muscle twitches
please help
problems
risk
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sleep
stress
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twitch
twitches
twitching
whine
worried
Hi Cals and Pals its been a while and since the diagnosis last year things have been horrible:( one thing after the other.
So during all this i have hurt myself mainly my back to the point i could no longer care for my Pals i had to place him in a care facility😞. This has been one of the...
I do not take any medications (I stopped Rilutek because of nausea). Recently I have noticed an increased difficulty in swallowing with more choking. I also get stomach cramps and nausea after I eat.
I think it might be related to having more difficulties with breathing after I eat, even very...
Hello there,
This is my first post on this forum, and first I want to say: I'm sorry to all out there who suffer from ALS or saw someone suffer from it. May this world be ridden of this disease. I mean no offense in any way by asking these questions, I only search for help.
My name is Duncan...
als
als do i have it
als?
arm
brain
breathingbreathingproblems
bulbar
bulbar onset
cold
early
emg
fasciculations
life
lift
mri
muscles
natural
onset
pain
questions
scared
swallow
swallowing
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wanted
worried