breathing problems

  1. P

    Scared 38 y/o Father

    I’m 38, married with 3 young children, and I’m scared to the point of falling apart. I will keep the story as brief as possible. This year has been the most stressful of my life. We almost lost my youngest at the beginning of the year and she was in the hospital for weeks. We had major financial...
    • Poboyross
    • Thread
    • als anxiety back bfs bfs or als? breathing breathing problems children falling family fasciculations father financial go away hypochondria ice life muscles neurologist problems scared sleep story twitches weakness young
    • Replies: 7
    • Forum: Could this be ALS?
  2. S

    Mom with FTD and ALS

    Hi all, my name is Mari and I'm Finnish. I lost my mom to ALS on Nov 17th. She had an Alzheimers diagnosis on July 2017 as we took her to memory tests as she didnt seem to remember everything as normal and did not cook or do gardening anymore nor cleaned the house as usual. She was diagnosed...
    • Stella78
    • Thread
    • als back breathing breathing problems christmas cure diagnosed diagnosis ftd kids morphine muscle neurology nurses oxygen problems questions symptoms tests walker worried
    • Replies: 4
    • Forum: ALS and frontotemporal dementia
  3. S

    Hi .Update and advice please.

    Hi I have been a regular poster on here and am still in limbo after 18 months. Yesterday after seeing my pulmonolgist my fvc was lower than ever 3.9. My sniff test was very good though 138. The sniff relates to the diaphragm so again this has confused everyone. I remember though violent...
    • Sidney
    • Thread
    • abdomen abdominal advice breathing breathing problems confused diaphragm fasciculations fvc muscle muscle wasting night problems test twitching update
    • Replies: 13
    • Forum: Could this be ALS?
  4. C

    diagnosed

    Hi to all, after 5 days stay in ALS clinik in Germany, I was finally diagnosed with bulbar onsen ALS with sensory involment... The professor told me that when the people are young there was more evidence of widespread muscle wasting in onset with sensory stuff.... I also have tongue wasting...
    • corwin
    • Thread
    • age als breathing breathing problems bulbar chronic denervation denervation diagnose diagnosed diagnosis foot muscle muscle wasting onset problems professor progression rilutek shoulder slow progression sma swallowing symptoms tongue umn young
    • Replies: 7
    • Forum: Newly diagnosed
  5. S

    Worried about son

    My son is 13 and has had some weird symptoms. Here's a list and explanations: Urination: he has the urge to pee a lot but says it doesn't bother him when he doesn't think about but he thinks about it all the time Breathing: He has breathing problems trying to sleep but says again only when he...
    • scare
    • Thread
    • breathing problems night problems progression sleep symptoms twitching worried
    • Replies: 4
    • Forum: Could this be ALS?
  6. M

    questions about emg and possibly worsening symptoms

    Hello, again, my name is Mario and I previously posted on this forum around October of 2015 about my growing concerns of having ALS. Up until to that point, I hadn't had an emg test to confirm or disconfirm my fears of this disease, and I finally managed to get myself tested on June 29, 2016...
    • mbernabe3
    • Thread
    • als als? atrophy breathing breathing problems cramping denervation emg exercise fasciculations fatigue free hope increase neurologist progression stiffness symptom symptoms test twitch twitching weakness worries wrist wrong
    • Replies: 5
    • Forum: Could this be ALS?
  7. M

    Scared out of my mind

    I am so worried. I have been experiencing many different symptoms. Twitching right leg . Right hand . Upper stomach muscles and face. Have been having severe breathing problems. Pulmonologist can't determine cause of shortness of breath. Saw a neurologist. He could visibly see twitching. Emg was...
    • Mmazz04
    • Thread
    • als brain breathing breathing problems cramping cure eating emg heart mri muscles neurologist problems scared shortness of breath speech stiffness swallowing symptoms twitching weakness worried
    • Replies: 0
    • Forum: Could this be ALS?
  8. K

    EMG tomorrow

    Hi, First time posting to this forum. Thank you for taking the time to respond. My main question is: I don't believe that I will be diagnosed with ALS tomorrow. But I dobelieve that I have something, and I do believe that I am getting worse. I don't really know what to do. If my EMG is clean...
    • Kimkim
    • Thread
    • abdomen als als? bfs breathing breathing problems clean emg cramps emg myasthenia gravis neurologist pain problems twitching weakness
    • Replies: 2
    • Forum: Could this be ALS?
  9. C

    ALS Respiratory Onset

    My husband has been having increasing breathing problems and weakening starting a year ago. Any exertion wears him out. After many tests for many issues, nothing has been found. However, 2 EMGs found issues in arm and leg. They say they can't diagnose als without three markers. Maybe it...
    • Chrismarie
    • Thread
    • als arm bipap breathing breathing problems diagnose diagnosed diagnosis falling onset oxygen problems respiratory respiratory onset sleep stiffness swallowing swallowing issues symptom tests twitches
    • Replies: 6
    • Forum: General discussion about ALS/MND
  10. L

    breathing problems?

    Hello. It's been a while since I posted on this site. I've tried to put ALS in the back of my mind and for the most part, I have. About three weeks ago, I started having some trouble breathing. I was "air hungry." I had the constant urge to take deep, satisfying breaths, for relief. Sometimes...
    • Lrichard
    • Thread
    • als back breathing breathing problems headaches muscle problem problems sleep spasms test
    • Replies: 4
    • Forum: Could this be ALS?
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