breathing issues

Hello, I've been following this forum for quite some time but have never had the time to share. my husband was diagnosed with ftd 2014 ALS june 2015. As of this morning he refuses any help with breathing issues..no oxygen no BiPAP no doctor visits no showering it's been almost 5 days again...

I have noticed a few changes with Steve regarding his sleep and his breathing. Today I had to insist that he actually sit down and talk to me. Apparently, the reason he is waking up so much at night is because he gets sinus congested and can't breath through his nose. He is on the Trilogy. We...

Yesterday my wife and I flew from Iowa to Arcata, Ca., 3 flights including one over 4 hours. On the long flight I experienced intermittent difficulty breathing, especially when I leaned back in the seat to rest. I experienced some lightheadedness as well. Once on the ground—in fact once at lower...

Before I tell you my situation, I really have to say that I have been reading posts on this forum for a little while and the community you have is amazing. I think it is so incredibly selfless of you to take time to respond to those who are deep in the throes of anxiety/hypochondria the way that...

Howdy y'all. Bob here. Started slurring just about a year ago. At first we thought it was a side effect to the diabetic medication I was taking. Two of them had been identified as doing such. We tried varring the dosages, stopped some, then others. The slure only got progressively worse.y...

Hi my name is johnskip and I absolutely pray everyday for everyone affected by als my story is I have been feeling major fatigue and had major weight loss and fasiculations felt widespread also having breathing issues when sleeping something keeps on waking me up in my throat I have been checked...

I've been reading a lot of post, and I was wondering how does one know how long one has with ALS. The million dollar question, I'm sure! My Hubby was diagnosed last month, though they think he has had it for 2 years, already! He has severe breathing issues, he can't walk as far as 40 ft...

I'm new!! My Husband was just diagnosed (Jan 20, 2016) with ALS, he had been having issues with his neck and losing muscle in his hands...fasciculations are in his arms, back, legs...getting weaker everyday.....severe breathing issues...he's on a Trilogy Machine to help him breath, he can go...

Ok.. I said I would not post there unless I have medical confirmation of my state. However, this is driving me crazy and completely took over me. I cannot do anything except for crying all the time. I started feeling very weird feelings in my right leg since New Year. First of all, it felt like...

Greetings All, I am a 46 year old Black woman who was diagnosed with Progressive Bulbar Palsy in August 2015. (stressed my race because I haven't ran across many African Americans with this disease and I hope to raise awareness among my race) My symptoms started slowly I noticed a slurr in...