breathing issues

  1. R

    Traveling to Colorado - air issues

    My husband was diagnosed with ALS on December 1st and is already using Trilogy at night to help with breathing. We are traveling to Colorado and plan to spend some time in Breckinridge. We live in Arkansas are not used to high altitudes. Does anyone have any suggestions about my husband's...
  2. T

    Could I have respiratory onset als?

    Hi everyone my name is jake and I’m 28 years old. My symptoms started over 2 years ago with random twitching and mild breathing issues. This past year my breathing has declined a lot. I’ve had a full cardiac and pulmonary work up all normal except pft showing restriction. I then saw a...
  3. A

    Cannot wrap my head around this..

    Hello, first and foremost I'm not looking for a diagnosis. Maybe just some positivity! I am a 30 year old female who was living a very healthy, active, meaningful life. The kind of life where I have 2 beautiful children, a wonderful husband, am a former mail carrier (haven't been able to work...
  4. L

    Reversible breathing issues with IVIG in ALS and MG

    Dear PALS, I've had an earlier thread regarding my mother, who's diagnosis is still uncertain. Both Laurie and Karen were very helpful. A short intro: My mother is a very complex case and has shortness of breath, orthopnea, loss of strength in upper arms and some atrophy of the deltoid...
  5. Y

    Breathing issues prompting move to skilled care facility. We're scared!

    Hey all, Have only posted once or twice before. I'm the caregiver for my partner, Mike, who has been diagnosed since August 2011. He uses a power chair and a feeding tube (although he's fortunately still able to enjoy a beer every night), a sip and puff respirator as he needs, and we use a...
  6. I

    I believe I have respiratory onset ALS

    Hi everyone Try to make long story somewhat short. It started after 10 day long flue-like symptoms in aug. Followed by left-sided chest pain and then breathlessness at exertion. Pain subsided and my breathing issues has stablized somewhat. I have to sleep with inclined bed to not wake up of...
  7. J

    MND timescales or other neuro issues?

    Good morning all, It’s a little advise I’m seeking as all the doc’s I’ve seen and test done have drawn a blank, but the fact remains, my condition is getting worst? I'm not sure what I have but I'm thinking its got to be a nero issue as everything else it coming back as clear, but I'm still...
  8. B

    First to go, voice or ability to swallow?

    Hi everyone, I have received an unofficial diagnosis and am losing my speech quickly, along with lots of respiratory weakness and breathing issues. My voice appears to be going first (especially tongue weakness) and I was wondering how long it took those who have lost the ability to swallow to...
  9. S

    “Make-a-wish” organizations for those w ALS?

    Hi! I’m new to this forum - my brother-in-law was diagnosed summer 2017. I’m looking in to organizations which grant wishes to adults with ALS. I’d love to help him and my sister take their family to Disney while it’s still feasible. He can currently still walk but is weakening and has breathing...
  10. S

    Some help required

    Dear all I'm in a really tough spot and have been for about 3 months. Please can I run my symptoms by you to see if anyone can relate to my condition and progress. I have felt a bit off since the beginning of the year like a growing fatigue, but I put this down to having a 1 year old (now...
Back
Top