Sorry for being crude but i am highly ticked off............ Most of you know i have been in limbo and recently started having breathing issues........... My very first muscle symptom was almost three years ago when i had a chest and throat spasms but thought i was having a heart...
Hey everyone, this is CB in Ohio. I went to a top Rheumatologist today at OSU. Bad news is , he does not think that what is wrong with me is auto-immune and said it is not Fibromyalgia for sure. I told him I was going to see an OSU Neuro on Monday and he said he thinks that is the right place...
hello everyone, I am writing for my husband, in August of 2007he began seeing his PCP for severe cramping in his legs, he was prescribed Restalin, no help, all blood test were negative for any inflammation, he seen her for approx 3 months every two weeks, he finally became discouraged and said...
My mother began having foot drop last July. She had nerve conduction and MRi's of her spine and brain. Nothing showed except the nerve issue in her foot. Since all of those tests, she has progressively gotten worse. She now has labored speech, unsteady gait that requires a cane. She has had...
Hi to all, and thank you so much for all you support...
I did read another thread on this topic - but I was wondering if there could be any other ailment or reason that causes this. Back in January I weighed 210lbs of mostly upper body muscle. Today I weighed 162. My back has taken the...
I had my appointment with Dr. McCluskey at Penn neurologic als clinic. His response after exam was, you don't have ALS. Went home optomistic but still have same sleep disturbances and swallowing issues. I have emg today. I have breathing issues with sleep, wake about every 2-3 hours feeling like...
Today I go to the clinic at Penn Univ Hospital. I find little reason for optomism as I feel so ill. I pray for something treatable but with the revelation on why I can't sleep for more than 2 hours with or without drugs, short of breath, I am even more concerned. I had a spirometry test...
Well this will be a super stressfull week. Tomorrow AM have appointment with pulmonologist, more importantly Wednesday with the ALS clinic at u of penn, and Friday new emg's. I am totally freaked out by the speed at which this has gotten to this point. Tried to work today and that was a joke...
Hi all,
I finally got to the ALS clinic and they think I may have MG. It is as rare as ALS, but symptoms are supposed to be treatable and life expectency is supposed to be close to normal. It is more than I could have wished for. They are sending me to UCLA to attempt to confirm because my...
Hi,
I'm looking for some guidance I guess.
Back about 1995, I had about 3 bouts of sensations I can only describe as my
muscles feeling like "concrete". It was kind of scarey but passed, and I forgot
about it eventually.
Now, forward to two years ago, all of a sudden I experienced severe muscle...