breathing issues

  1. K

    Drastic change in breathing

    Hi everyone. My dad was diagnosed March 2018 with ALS. He has limb onset. His breathing, swallowing and talking have not been affected as of yet. ... so we thought. Today he had a breathing test. His score is December 2018 was 92 and today it was in the low 60s. That seems like a drastic change...
  2. K

    Thoughts on When to Get Hospice

    My PALS and I have decided to use hospice when the time is right. He uses a Trilogy about 17 hours a day, does not want to be trached or have a PEG. He is able to eat whatever he wants (with the help of water to wash it down), he transfers from scooter to chair/commode but anything he does is...
  3. D

    Bulbar ALS?

    Thanks to you all for taking the time to read this post and answer my questions. I'm a 42 year old Male. For the past month my tongue has felt extremely swollen and sometimes sore towards the back. Occasionally I will get tingly/crawling feelings on the side. It is difficult for me to...
  4. L

    I have a feeling this could be ALS

    Please tell me if this sounds familar to any of you... I am a 31 year old mixed race female and 2 months ago I started to have trouble swallowing, then trouble breathing came next, soon all the muscles in my body hurt and felt very weak. The weakness and pain started with my neck, jaw and upper...
  5. P

    My symptoms.

    Hi, i'm a guy, 22 years old from colombia. A month ago I started with a multiple pain in my body, arms, fingers, and upper back and lower back. In the next days appear tingle in my hands and foots, lately appear twitchings in all my body, but more marked in my right hand. These last days I have...
  6. S

    Im confused about my EMG

    Hello Everyone, First I want to say thankyou to everyone on this forum that has been affected by this disease, whether they are a Pal, afamily member, or friend. Your strength makes you all gods amongst mere men. 2nd, if after reading my post, if you feel I shouldnt be here than tell me to...
  7. A

    Breathing, Swallowing issues

    Firstly I want to thank you all in advance for taking the time and effort to read this post I know time and effort are so incredibly valuable to PALS/CALS. I have taken the time to read the sticky’s and understand that I fall into the lowest possible risk group. To make this short I have...
  8. J

    Scared

    I had an EMG test done in 2016 when I developed foot drop and was tripping and occasionally falling. The neurologist didn’t have any concern at that time. He said I had some arthritis. I saw a neurosurgeon and decided to do surgery for foot drop on my L5 section, discectomy she called it...
  9. R

    Traveling to Colorado - air issues

    My husband was diagnosed with ALS on December 1st and is already using Trilogy at night to help with breathing. We are traveling to Colorado and plan to spend some time in Breckinridge. We live in Arkansas are not used to high altitudes. Does anyone have any suggestions about my husband's...
  10. T

    Could I have respiratory onset als?

    Hi everyone my name is jake and I’m 28 years old. My symptoms started over 2 years ago with random twitching and mild breathing issues. This past year my breathing has declined a lot. I’ve had a full cardiac and pulmonary work up all normal except pft showing restriction. I then saw a...
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