breakdown

  1. U

    How many had a negative EMGs & still ended up w/ ALS?

    I cant type much now, as Im truly on the verge of a breakdown. Please forgive me but would like to know if anyone has had negative Emg's only to find out later that they did have ALS. THX
  2. KANSASTOM

    PSW's and FIB's Question

    I am still reviewing my EMG results and have a a question somehere may be able to answer. I understand that PSW's and FIB's are a sign that the muscle has lost it's connection, this can be cause by the breakdown in the insulation or a discontinuity in the internal part of the nerve or a...
  3. awieleba

    got my records, wright or anyone--need help

    HI all, I have been 'trying' to keep a low profile and not over stress or annoy anyone! I am trying to do the best I can and keep postive per my tests. Anyway, I finally got the emg/ncv and biopsy report to read myself since my als spec. wont tell me things. The emg was normal all across and...
  4. freddiesnetty

    WE Survived IKE

    Well I have not gotten online in such awhile I don't know if I can even type....I am sooo tired, We did get power on yesterday after 8 days without. Freddie did ride the hurricane out in the hospital, what a nightmare that was.....The power and the generator went down and it was ugly, raised all...
  5. C

    Hello To everyone

    Well y ALS experience began last month (June 08). My mother was diagnosed with ALS. I have to admit that I was familiar with the disease but not nearly an expert. My family and I are learning. My mothers spirits are so high that it is spreading to us as well. I see her in her current...
  6. E

    Need some advice

    Hi. My name is Erin and I am new to this site, so I hope there are some caregivers out there that can relate. Thank you to those that replied to my first posting. My husband was diagnosed with ALS May of 2007 at age 35. We had a baby girl the following October and in February we moved long...
  7. C

    thanks for being here...

    I have read hundreds of posts over the last 3 years but this is my first attempt to communicate; the need to talk finally won, I guess. I can't tell you how many times all of your posts made getting through the day possible... there are some things that only you all can, and could, possibly...
  8. L

    Catch 22>>> Need Advice

    OK Guys and Gals, Here's the deal. I have ALS or another MND but my tests are clean so the docs wont diagnose me. However, I twitch like crazy, I have terrible atrophy, and my tongue is a mess. In addition all my joints click due to being unstable due to extreme muscle loss. I know I have...
  9. L

    caregivers..need some advice

    Hi, I am new to this board and I am desperately searching for some advice as to how to help my mother. My father was diagnosed with ALS in 1998. My mother is his caregiver and it is getting to a point where it is is physically and emotionally taking it's toll on her to the point where I am...
  10. O

    I'm new & have a question

    Hi, my name is Chera & my mom is in the late stages of ALS. Only 2 days ago, we had to resort to diapers because even with her husband & extra help we are unable to move her to the potty chair. She lost use of both arms & hands a while back & her legs are now completely useless. We are unable...
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