I thought that it would be interesting and enlightening to post links to the Government required Financial Disclosures of the Organizations that are in existence and granted Nonprofit status due to their mission statement of assistance to PALS. I think that this would be very beneficial to the...
Hi everyone, having a hard time sleeping..... anxiety, nervousness... I think i need to up my prescription. I saw my doc in November for my follow up, now i go back to have ANOTHER emg and physical therapy session on the fifth. Then ofcourse there will be another follow up visit. The doctor...
Ok, this is probably something that I should know because I'll bet that it has been talked about here before but I am going to ask anyway. What is the difference between PBP, PLS, PMA and just plain old ALS?
The reason that I ask is because none of my doctors has ever mentioned or even...
There seems to have been a breakdown in the Forum Follies road show due to excessive camping on the part of some of our members. I'm not casting blame ... an overwhelming urge to **** in the woods is a well-known side effect of ALS.
Since a certain "Physical Zaphoon" started the whole shebang...
I've been taking care of Tammy now for over 3 years. She has required help with everything now for about 6 months. Althought our insurance covers home support and they are here most of the time I've never taken a break..... Earlier this week, Tammys pej, not peg, was blocked and all attempts...
I have been lurking for almost two months since my father was diagnosed with ALS.
I had a breakdown over it and I am now on anxiety medicine and I am slowly accepting it.
His started with his legs. He has progressed rapidly with his hands, arms and just this week he said he was having...
My mom's onset was December 2006. She is now completly debilitated since April 2008. It is getting to the point that you cannot understand her speech although we all desperately try too! Whenever you try to figure out what she says and can't she gets so upset that she starts to whale which...
I have been following Tag's story and I am hoping for the best. I cannot help but to see similarities between her husband and me. My saga started out looking at my lower back condition to explain the atrophy of my calf and the paralysis of my left big toe. At first it was a possible tumor...
Up until 2 weeks ago Tammy was still able to walk short distances using her walker, use the toilet (had a raised seat), sit in the shower, sleep in our bed. She got really sick stopped eating stopped having bowel movements and looked really terrible. I had to call 911 and get an ambulance to...
age
back
bed
breakdown
breathing
caregivers
eating
electric wheelchair
family
health
home care
hours
immediately
insurance
life
lift
love
morphine
night
pain
peg
respite
shower
sleep
suction
support
swallow
transfers
update
vent
walker
wheelchair
I have recently found this forum and am impressed by the knowledge so many seem to have. Sorry for the long background below, but I would appreciate any input.
I’ve recently turned 43, and for almost 10 years, I’ve been seeing a Rheumatologist for anklyosing spondylitis, a degenerative joint...
als?
arm
breakdown
choking
cramps
emg
health
hip
hospice
ice
life
muscle
muscle weakness
neurologist
pain
problem
problems
questions
swallowing
symptoms
tests
vitamins
weakness
work
wrist