breakdown

Hi, I'm new here to the forum and the friend/caretaker of "Patti-PALS." We're getting a Permobile soon, as well as a van. We plan to do some cross-country travel afterward. But we worry about one thing: How do we transport Patti if the van breaks down once she's confined to the Permobile? That...

I am a 27 yr old male. My first symptom began just over 4 years ago, when I began to be unable to take a full breath. I now get out of breath easily and cannot take a deep breath even from a sitting position or when I yawn, and when I do things like blowing out candles or singing or anything...

I have heard of ALS only through Lou Gehrig. I have seen the ice bucket challenges gain popularity recently. I am in college to be a physical trainer and have been working out excessively lifting heavy weights when I noticed fasciculations in my body and tremors when sleeping. I started to...

Hello everyone, i'm a 27 year old male and about 3 weeks ago I started having strange symptoms like constant muscle twitching in my legs, stomach, feet, calves and torso with occasional random twitching occurring other places. I just chalked that up to stress as i've been experiencing a lot more...

HELP, My husband has ALS and a veteran. The VA says that my husband has the right to say "NO" to a nursing home, because he is in his "right mind"! I am physically and emotionally burnt out, and about ready to have a breakdown. I am the only one around to take care of him! No other family...

Ok so I have read the thing about weakness vs fatigue and it gives me hope. however first off let me tell you my mother had it, sister has had it for 10 years and my nephew(who is older than me ironically) has just been diagnosed with it two weeks ago. So my hands have always felt like it had...

I don't really know where to put this. I am not coping very well at all right now. Mom has gotten worse in the last two months and is nearing the end-stage of this disease. When I'm at work I usually cry most of the day. When I'm at home with her, I alternate between super stressed and...

Hi all. My mother, age 72, was diagnosed with ALS about a year ago, after several years of tests that showed nothing. It started with a knee replacement surgery that she had. About six-months post-op, her right foot started dropping, and she could not control it. Her doctors initially thought...

Mom is beginning to have reddened area on sacrum. Feet are also quite swollen. I understand the feet are swollen because all she can do is sit and fluid is leaking/pooling in the feet. Would Lasix (fluid pill) help here. Also the nurse aid who comes in to help my dad daily said mom was...

I've been holding off writing this week because I don't want to really bother all of you but you all had such insight and were so helpful with my prior posts. I've been going down hill this week bad. My anxiety and panic is through the roof I keep looking at my left arm which feels very funny...