brain

  1. H

    recently diagnosed with ALS

    Hi, my mom recently (8/2/2017) diagnosed as ALS by neurologist in Santa Clara Valley Medical Center (Jeffrey Fraser, MD) She had a first symptom of weakness on her left ankle and few times of loosing balance on April 2016. Before the symptom, she fell down from the chair while she was wiping...
    • Hjlee
    • Thread
    • afo als ankle back balance brain breathing chair diabetes diagnosis early emg fell hope mri muscle twitching neurologist newly diagnosed als problem progression second opinion symptom test tests twitching walker weakness
    • Replies: 7
    • Forum: Newly diagnosed
  2. B

    Awaiting diagnosis

    Hello everyone, introducing myself here and seeing if anyone here can offer some help. I'm in desperate need. I'm a 34 yr Male. I apologise in advance for the long post. Things started around 3 weeks ago while I was away on holiday. I felt that my right hand was strange, and unable to...
    • Bailey360
    • Thread
    • anxiety back brain breakdown cramps denial diagnosis family fasciculations fingers food foot headache holiday hope night nose problem reading scared support swallow swallowing symptoms twitches worried wrong
    • Replies: 4
    • Forum: Could this be ALS?
  3. Jackfishem

    Long term care insurance

    My mom passed away in January of 2017 after a year long battle with ALS. Her brain was autopsied and markers of the c9 mutation were found. Now that I know what to test for, I would like to have genetic testing done. I know I need to obtain long term care insurance before the testing and would...
  4. C

    Follow Up from April

    Circling back around - my original thread was closed. https://www.alsforums.com/forum/do-i-have-als-als/38085-need-some-advice.html I saw the neurologist in April who did a basic exam and based on my history ordered another MRI of my brain and spinal cord with contrast. The results came back...
    • CrystalAnn
    • Thread
    • advice anxiety arm back brain cramping emg flexing life lift mri muscle neurologist shoulder stress test testing tongue work wrong
    • Replies: 3
    • Forum: Could this be ALS?
  5. N

    Strange symptoms and dirty EMG

    Hi Hoping to get some knowledge from experienced people on the results and symptoms I've been having for 2 months. 35 female, only started worrying about ALS when looked up fasciculations online. Bad idea. May-June -twitching in abductor digiti mini muscle, left. Which moves pinky side to...
    • Nella82
    • Thread
    • 2nd opinion advice als arm atrophy back brain clinical cramps denervation early emg fasciculations female lift mri muscle neurologist pain stress symptoms testing tests twitching weakness
    • Replies: 6
    • Forum: Could this be ALS?
  6. C

    Abnormal EMG - Feedback Appreciated

    Hi Everyone, I've been lurking for a while now but decided to post today after my EMG results came back in. I would like to preface by saying that I really appreciate anyone's feedback. No matter the outcome of my situation, this process has really opened my eyes and encouraged me to get more...
    • ChelseaB
    • Thread
    • advocacy atrophy awareness back brain chronic denervation clinical denervation emg eyes fasciculations fatigue keyboard mnd motor neuron disease mri muscles questions weakness
    • Replies: 2
    • Forum: Could this be ALS?
  7. F

    Upcoming EMG + Trouble Walking

    Hi! First post here. Thank you for your insight in advance. I'm female, 35 years old. Please bear with me as I try to walk you through what's been happening. For the past 18 months, I've been experiencing strange "episodes" of muscle sensations. They usually come on slowly and last for several...
    • Felix
    • Thread
    • back balance ball battery brain breathing denial emg fatigue female mri muscle myasthenia gravis natural night paralysis paralyzed shoulder sporadic stroke symptoms tests twitching weakness worried wrist
    • Replies: 15
    • Forum: Could this be ALS?
  8. K

    Enhanced Sense of Smell

    Not sure if it is because I am using the tube more or if it is ALS lurking in new parts of my brain but my sense of smell has become ridiculous. My husband thinks I am part bloodhound. It is both good and bad smells. Has anyone else noticed this? I keep wiping down surfaces in my kitchen...
  9. A

    Any Ideas??

    I'm trying to figure out who to turn to if none of my symptoms appear to be ALS. Please check my history below. If you have a recommendation or another forum, please share. I do see my neuro again on August 10. We will be discussing meds. March 2011 -Electric Nerve pain in feet and hands...
    • andrealw
    • Thread
    • als ankle anxiety arm back brain christmas emg family foot health help! ideas ignore meds mri pain pressure spasms symptoms tests twitches
    • Replies: 4
    • Forum: Could this be ALS?
  10. T

    Worried Swede needs a little advice!

    Hi! My namn is Johan i'm 34 years old and live in Sweden! Hope someone can come up with some good advice about my current situation. This has eaten me and my family for some time now.. For about 2 months, I have been on several hospital visits without being diagnosed. I have done several blood...
    • The Swede
    • Thread
    • advice als atrophy back brain breathing cramps emg family fasciculations hope hyperreflexia lift mnd mri night pain problem scared stress tests twitches twitching weakness worried
    • Replies: 37
    • Forum: Could this be ALS?
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