brain injury

  1. K

    New CAL

    Hi my name isKristen and my dad was diagnosed with bulbar ALS on September 7th of this year. It's a new diagnosis for our family as we had previously thought he had myasthenia gravis but his symptoms have been getting progressively worse. Both my sister and I are speech therapists and I...
  2. P

    PoNS: Heard of it!

    Portable neurological stimulator, PoNS. Non-invasive! Developed by University of Wisconsin-Madison. Marketing will be done by Helius Medical Technologies. FDA approval should be in 2016. Researcher told me over the phone that he knows it will help all neurological disorders just have to...
  3. S

    Worried after gardasil

    27 male: Been reading all your forum topics for awhile since I started having issues (August 2015). I have a brain injury so sorry if I explain in a mess. To start * got gardasil 1 shot gained a positive ANA and made my fibromalgia get worse *now am near skin and bone no muscle in forearm (have...
  4. M

    My PALs Fell Friday - Scared and Searching for Next Steps

    Our PALs has been living with ALS for almost 8 years --- he is now to the point where is upper body, neck and breathing are the most affected. His legs still supported him but he had to move slowly. While caring for him on Friday, he got up to go to the bathroom. I walked him in, helped drop...
  5. K

    My mother in law newly diagnosed.

    My dear Mother In Law, grandmother,great grandmother,wife and mother to all of us who love her was diagnosed with PBP the day before Thanksgiving. Our family is reeling with pain and disbelief. Finding this place was a God send! My Mother In Law is 80 biologicly but works like a 60 year old...
  6. T

    Dad newly diagnosed and mom passed away....

    This is kim.. I had posted that my dad was newly diagnosed a few weeks ago and had explained how it was extra bad because he was also taking care of my mom who had suffered a brain injury 10 years prior along with the help of care givers... well, she passed away on Thursday, last week. Wow... I...
  7. T

    My dad just diagnosed....

    My eyes are swollen from crying off and on since 2:00 this afternoon when my dad came over to tell me the news that his issues are caused by ALS and not his back problems. I am absolutely devastated, he is 66 and has been having issues since summer time.. leg issues that have progressed to...
  8. T

    Does anyone have experience with Walter Reed?

    So I am in a bit of a predicament. I am an Army officer (Captain) with 16 years of service currently serving as a recruiting company commander in Ohio. I am closer to an Air Force Base than an Army base, so I see a Neuro at wright Patterson Air Force base in Dayton where the chief of neurology...
  9. R

    Experience with Brain Injury after Diagnosis?

    Hi All, I am new here and looking for people who have had a similar experience as I have. My father was diagnosed with ALS in June 2013, and has had a somewhat rapid progression of the disease. At the time of diagnosis, he had lost function in his left hand and was walking with a cane, but...
  10. 3

    Could this be ALS

    I am 49 years old and been trying to found out what is wrong with me. My symptoms have stumped my GP. For the past 6 weeks I have experienced severe pain in my upper thighs ( mainly right side) my buttock check ( right side) both feet. My right hand goes completely numb and my pinky and ring...
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