botox

  1. abnorm

    Admission charge

    You charge way too much to join your club.....but Thanks for being here....We officially joined your ranks July 15, 2014 I'm Doug a CAL to my wife Pam.....we're OLD compared to many posting here.....Pam just turned 63.....she's been a legal secretary in Orlando "forever" .......we've been...
  2. AuntSilly

    How many think the specialists care?

    Been to multiple specialists, multiple pokes, even Mayo...and more to come over the next months as I wait for the "appropriate" 48 or 60 months necessary to "achieve" the diagnosis. Still no one wants to say ALS/PLS; clearly, motor neuron symptoms and clinical signs. Only PM&R specialist has...
  3. A

    Excess Saliva

    Hi everyone. My stepdad has bulbar onset ALS. He is having trouble with excess saliva. We have tried 2 oral medications which caused too much dizziness and he can not tolerate the drops. From our first ALS clinic in June, they spoke about Botox. Has anyone had that procedure? And if so, was it...
  4. A

    Radiation therapy normalizes life-threading saliva

    I found the following article in a German forum and translated it , however, maybe not perfect! Diseases of the central and peripheral nervous systems such as amyotrophic lateral sclerosis (ALS ) may lead to a strong flow of saliva , which often leads to swallowing and bring saliva into the...
  5. ysabel

    mri scheduled

    My new neurologist could not believe I had no prior imaging done. So I have an mri scheduled for the 11th. I had blood work done today. The doc explained that parkinsonism and Parkinson's isn't the same thing. And Parkinson's has treatment parkinsonism doesn't. The neurologist in la jolla...
  6. HalsWifeFran

    THC/medical marijuana for ALS?

    Does anyone have experience using THC for advanced ALS? Hal has gradually getting off of his anticholinergic medications - these have included medications to help with muscle spasm, salivation, sleeping, breathing, allergies, and pain (Baclofen, diazapam, glycopyrrolate, benedryl, atropine...
  7. C

    Question for Bulbarians

    I was diagnosed last Jan with bulbar ALS. I was doing pretty good, had tube put in in June. Recently had Botox done for saliva and now I'm having problems sleeping, feel like thick junk stuck in my throat. I toss and turn all night long. Sleep with two pillows almost in a sitting position...
  8. L

    Surgical options for swallowing troubles?

    This article is about another neuromuscular disease but it sounds similar to what people with MNDs experience- progressive swallowing problems due to weakened bulbar muscles. Just wondering, if there are surgical options that could give people more time with the ability to swallow, why don't we...
  9. L

    Curious

    Hi, I have some questions. But first a brief history. 3yrs ago my right upper arm start to go into spasm, it would last a couple of minutes, was painful and then it went awa happend (x 4+ a day) I saw a neurologist- he thought it was stress related (I am a Uni Student) I had an MRI x 3 all...
  10. B

    Mother has been diagnosed with PBP

    Hello there, I hope I posted in the right section. My mother was diagnosed with Progressive Bulbar Palsy last month. I guess her issues started about a year ago. Her speech was fine but for some reason she thought she had cerebral palsy. Not much longer after that her voice started to change...
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