boston

  1. SyncOrSwym

    "Potty" Animal

    I think my body heard someone from Boston inviting people to a party -- and heard "potty" and decided to go with that. I spent probably close to 5 hours on the toilet Saturday, and then another couple of hours there Sunday. NOT fun! My rump was raw, and my legs were sore from trying to get up...
  2. KimT

    St. Margaret at Mercy Team Gleason House

    I talked to this facility today, explaining that I'm a PALS without a CALS. This might be an option for me when I lose my independence. The State discourages out-of-State residents being admitted if they are on Medicaid BUT if one has assets even to cover one year, residency will be...
  3. H

    Home healthcare

    Is there anyone from the Boston area who can recommend a home healthcare agency that can help my sister? She was diagnosed with bulbar ALS in December, and I am seeing her for the first time since then this week. I am utterly shocked at the change - she can barely walk and falls frequently...
  4. D

    Concerning EMG for teen. Thoughts?

    Hello everyone. My name is Daniel and I am 18 years old. For about a year, I have been having fasiculations that have progressively gotten worse.These happen everywhere on my body. In my calves they are 24/7. The rest come around my body like popcorn. Ive noticed that with movement, they...
  5. D

    Brother Has ALS

    Recent article so I found interesting, has anyone tried this? my brother is in total denial of his diagnoisis of ALS and I would like to offer some hope to help him come to terms and accept his diagnosis so he can get the help he needs. Tuesday, January 12, 2016 12:14PM SANTA MONICA, Calif. --...
  6. S

    Had all the test, now waiting for more answers?

    My friend had many blood test, breathing test, MRI of the spine & neck (not the brain and don't know why) EMG (the person who took it asked if she had polio because it looked like post polio & no she never had polio. They said they do no think MS, Lyme, RA. The Neurologist said it is MND & he...
  7. KatieNBoyd

    How do you plan things?

    So since the diagnosis we have just sorta stumbled one month to the next in sort of a haze. My PAL is now down to 130 pounds (in June he was 155 still against the PEG idea) even after eating a lot the last few days with holiday food. Currently we just scheduled doctor appointments (his...
  8. Mtzu

    Tradition of Hope

    Last night Andrea and I attended the Augie’s Quest Tradition of Hope Gala at the Beverly Hilton Hotel. The food was great, the entertainment was spectacular, and most important we met many wonderful people who are very dedicated to finding a cure for ALS. Last night over a million dollars was...
  9. Nikki J

    PLS study

    I copied this from a post in another group PLS study, at Mass General in Boston, Dr. Paganoni recently received the Virginia Sweeney Fellowship to study PLS from the Spastic Paraplegia Foundation. MGH is one of a few facilities in the world to do a combined MRI-PET scan. They have been doing...
  10. Nuts

    Just slammed....

    OMG...I just found myself on the other side of the situation I've faced several times now. You know, when you tell someone your husband has ALS and you can see immediately from the look on their face that they also have or had a loved on who battled this monster. I brought hubby for his...
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