boston

I'm no longer eligible, so don't know how good a study it is, but in case you're not on the mailing list: This initiative, titled IMPACT-ALS (Investigating and Measuring Patient And Caregiver Trends about ALS), is a collaboration with three industry partners (Biogen, Ionis, and Cytokinetics)...

Let's see if we can get these sub-forums going again. Years ago I had to go to Chicago so I went to a bar in the airport. (The way things are going today I don't know if they still have bars in airports) Anyway... I climbed up on the bar stool and an attractive barmaid came up and I ordered...

We have discussed before. I realize it is very hard to plan that far ahead but the early bird registration deadline is August 16 ( British time). An expensive proposition gets more so https://www.mndassociation.org/research/international-symposium/boston-2017/ Let me know if anyone is...

My Rhine Cruise adventure got off with a bang. FLight from Orlando to JFK in New York was delayed for three hours so we finally left about 2pm. I settled back, got a beer, then relaxed as I had a few hour layover at JFK before my flight to Zurich. Fast forward to 2am sitting in Boston after...

Hello everyone, I hope people with ALS will consider applying to this program and being part of this year's ALS/MND International Research Symposium in Boston in a very unique way: https://alsmndpatientfellows.wordpress.com/ Feel free to follow up with questions of course! Rob

My wife was recently diagnosed but it was suggested we get a second opinion. I like the look of the Leahy ALS Clinic as it won't require trips into Boston. Anyone have any experience? The other options seem to be Brigham Womens or Mass General. In need of someone with experience.... John

This was from ALS TDI and an interesting listen: ALS Unfiltered Webinar: Top 10 Things in ALS Research to Watch for in 2017 | ALS TDI List he goes through: 1. Edarvone 2. Tirasemtiv 3. Masitinib 4. NP001 5. NurOwn 6. AT-1501 7. Communication Devices 8. Precision Medicine 9. New Commish @ FDA...

The researchers saw a 50% extension of survival in mice: French scientists win $1 m. for results of treatment on mice with ALS - Business & Innovation - Jerusalem Post An independant study in Boston confirmed the findings too: Prize4Life Announces $1 Million ALS Treatment Prize Winner

Hello---My name is Cathie and I am from Boston. After over a year of tests and doctor appointments I was diagnosed. I now am getting care at the ALS clinic at Mass General Hospital. I am walking with crutches and use a walker at home. I have stairs into my condo building and I am afraid I...

Everything seemed to be going okay with the PEG. Then, the day before I was supposed to fly to Niger for work for a week, then Paris for a day, then MIT for a week of training, she had a little fall. She was able to get herself up somehow, crawling to the living room and hoisting herself up with...