book
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New cars...
New cars… (For those bored... something to read.) :-) Fifteen, twenty and 30 years ago when I bought a newer or a brand new car after I signed the paper work and got the keys… I’d get in the car I just bought, happy with my purchase. I’d reach under the front of the seat and adjust the seat...- Clearwater AL
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- alert system arm book driving ftd hope life media mistake oil vent voice work wrong
- Replies: 10
- Forum: Rants and raves
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Gideon's Question
i asked "how much more", and was wrong for doing so. i have no right feeling sorry for myself. it is becoming increasingly difficult to remember who i am while this disease and the illness of my loved ones comes bearing down on me. i need to remind myself to be thankful and to use what ever i... -
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Afraid of dying / existential stuff
Hi. Lately (few months) I have been feeling depressed and anxious. I am afraid of dying. Not the dying itself, but the existential questions around it. Was my life useful? Have I been inspirational, funny, social, intelligent...good enough? Will the not forget me? I keep getting stressed...- Moira
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- book children depressed life questions sad scared vpap
- Replies: 3
- Forum: Could this be ALS?
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Wish I never watched ALS videos but....
Hello - I am a 38 year old male 6'0 173 lbs Medication: Adderall, Zoloft, Kratom I been noticing lately that I get very tired when walking up hills or stairs. After the second flight my thighs really start to burn. I am not out of shape but I also don't work out regularly. I have about 2...- Anxietyafoot
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- age als arm back bed book brain driving headache hope ice increase mnd money muscle muscle twitch night pain shoulder story test tests twitch twitches wanted weakness
- Replies: 2
- Forum: Could this be ALS?
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Newly diagnosed
I was diagnosed by a neurologist about 5 weeks ago after two EMGs and MRIs confirmed his suspicions. I'm not sure how long I've had this as I was in treatment for Lymphoma in 2014 and never fully recovered from Chemotherapy. Now that I have done some research, I think I was passing off some...- Grhbr
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- advice als book breathing caregiver clinic diagnose diagnosed fatigue feeding female hospice neurologist newly diagnosed problems research support swallowing symptoms symptoms of als tests travel treatment voice walker
- Replies: 21
- Forum: Newly diagnosed
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is anyone else impressed by...
A funny spin on perceiving my disease-- Is anyone else impressed by how much they still *can* do when you look at your muscle atrophy? I look at my hands and they look so shocking to me from atrophy, as if they belong on someone whose been living in a concentration camp. Yet here is am...- Kristina1
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- atrophy book camp cell fingers muscle
- Replies: 5
- Forum: General discussion about ALS/MND
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Worrying Symptoms
Hi all. Wanted to say hello and express how much respect I have for everyone here after reading through many posts in which people were helping and reassuring others. It's heart warming to see. Over the past three weeks I have developed muscle weakness, twitching and fatigue. Starting in both...- mattmullen
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- book fatigue feeling weak heart muscle muscle weakness reading symptom symptoms twitches twitching wanted weakness worried
- Replies: 7
- Forum: Could this be ALS?
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Driving
Just got finished reading a chapter in this book ,about dealing with ALS. One sections says in order to drive and be covered ins. Company must be notified. Has anyone had a problem with this. I've never been told or heard of this , just did a 27 hr. Trip back from Florida to Ontario. Anyone have...- Ed Par
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- als back book driving problem reading trip
- Replies: 8
- Forum: General discussion about ALS/MND
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16 years on from diagnosis
Hi folks, (I hope it's appropriate to post this here - my apologies if not - I'm new to the site and I thought this might just help someone...) I was diagnosed 16 years ago. In 2002 I was having falls and finding it awkward to place my feet but I never saw the diagnosis coming. I was just...- aitchsee
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- age als book diagnosed diagnosis healing health heart hope life love medicine power reading research support work
- Replies: 3
- Forum: Stories of hope
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Dear Past and Current Caregivers
I want you to write a book. I would like as many of you as want to contribute 5+ pages about what you have learned about, ALS including tips and tricks, what you have learned about life living with a PALS, and life after your PALS has left. I would put all my energy that I have left into...- tripete
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- als book caregiver caregivers documents helpful introduction life
- Replies: 16
- Forum: Current caregivers
