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I joined last weekend - my daughter has had ALS for 14 1/2 years I saw a "neck brace" on this site and wanted to see the picture and was not able to access the pictures of it. I was wondeer just how long or what does it take for me to be an official member of this group. This is not the first...

Hi! My name is Lily and my mom is living with ALS. It has been quite a difficult journey and I often feel like my life is on hold as I try to figure out how best to share this journey with my mom. I wrote a poem about it which might encourage some of you... You can read it at my blog...

Hi everyone. I am new to the board, have only posted a couple of times, but would like to offer ANYTHING to help you folks get through your day a little easier. Generally an occupational therapist prescribes and trains you on how to use assistive devices. Sometimes though for insurance reasons...

This is an update on the condition of my grandson who had brain surgery October 12, 2007 and that I spoke about in my Blog. Here you can see how is doing when he says his first word, STINKY. If you look close you can still see the scar on the top of the front of his head. He is a happy baby...

Good Evening Everyone ~ My father-in-law was diagnosed with PLS in October 2007. It has been a hard battle for him to accept his diagnoses. I have done some searching and I have found no PLS support groups....I would like to request any updates on those of you who have this and could give...

Hello everybody, I'm the nephew of the strongest man I have ever known. My uncle passed away from Lou Gehrig's disease nearly 5 years ago now. I was with him every step of the way, and he fought a battle that lasted 8 years until he finally passed away. My uncle influenced my life, and the...

I know that I am new, but I have come for help. I am facing death at very progressive rate and for some reason I feel like I am being punished.. I was reading Al's story about his fingers curling and I am not allowed to see the pictures, I have no idea how to reach a Moderator, it seems now...

I have been monitoring these forums off an on for a couple years, my mom has ALS and has most recently decide to travel to India for Stem Cell treatment. Everyone she has talked to have been very positive. I thought anyone suffering with ALS would be interested in it. Her blog is very personal...

Good morning all, My mom is in the beginning stages of ALS (official diagnosed in June). She said she watched a DVD last night given to her by the ALS clinic and was worried because she found out there would be pain. She thought that if the muscles no longer worked, that the nerves would no...

It is with great sadness I have to tell you Chris Mann aka ranger03, mannco74 passed away yesterday after a 4 yrs battle against als. I'm sadden by this news although I knew it was coming, it still breaks my heart. Chris is at peace now, my thought's & prayers are with Chris & the Mann family...