1. M

    Liquid diet question

    My wife has PBP and had her PED installed in November. She was encouraged to use it to supplement her regular diet. She then became a fan of Eric (author of "Eric is Winning") and decided to switch to an entirely organic diet, distilled water, whole foods, the works. After a while she wanted to...
  2. P

    blender recipes for tube feeding/ do's & don'ts

    HI! These are a few things I've found out in the 6 mo or so since I've had mine. :-D 1st - if you put in enough liquid you can liquify ALMOST anything. Some things I've put into my OATMEAL SHAKE are; 2/3 cup oatmeal, water or milk, plus 1 multivitamin talet, sugar (lots, Ineed the extra sugar)...
  3. S

    My Mom

    My mom was diagnosed with PBP in May this year, she is 64 we went to the neurologist because the GP and ENT specialist could not find anything wrong with her throat, but she was slurring lightly. That was in May, now she has stopped speaking completely and only grunts, we use a note book in...
  4. T

    Another Newcomer

    I sent in a reply, but just realized how to start a new thread! So I'm just introducing myself and thanking everyone for the responses and insight you provide! Here's my story: My husband was diagnosed with ALS in 2005 after many months of chiropractic and orthopedic care for pinched nerve...
  5. L

    Ice Cream

    As I mentioned in a previous post, I am very recently diagnosed (a week ago) and have been coming to terms with it emotionally. As a longtime member of AA, I think I have a bit of a head start on things like acceptance, turning it over, and living one day at a time. It brings not only a sense...