bipap 24/7

  1. KarenNWendyn

    Share your dreams

    I’ve always had an interest in hearing about people’s dreams. I’m talking about the ones people have during sleep. I actually did a thesis during medical school on dream interpretation. Last night I had one where I was walking around and realized I was wearing a BiPAP mask. Every time I...
  2. T

    Is this the end??

    Hi - My name is Michelle and my sister was diagnosed with ALS April 2015. She seems to have got it pretty bad and drawn out. At first it was just her tripping a lot, then she would just fall and couldn't get up, couldn't get off the toilet or out of bed without help. As it got worst and worst...
  3. Q


    Hi, I like to know if it’s true that if a person with als who uses a bipap 24/7 will not need invasive ventilation?
  4. T

    O2 levels

    My Mom has been getting weaker and her breathing seems to be going fastest. She is on bipap 24/7 and seems relatively comfortable on it but when the nurse came the other day her O2 level was 93 - previously it had been above 95. She doesn't ever complain even when I ask. I know there is no...
  5. M

    swallowing difficulties

    Hi, It has been some time since I have been on the forum, but last night I had quite a scare and I'm hoping to get some advice. I have been having increasing difficulty with swallowing in the last few months. At my last doctor visit we discussed a peg and I am scheduled for the procedure on...
  6. Graybeard

    Going for the Vent

    I am on bipap 24/7 for the last two-three weeks, and it's a big hassle. I know it's only going to get worse, and I still have to do my complicated two businesses taxes. Wifey and sons are supportive. D-I-L needs a job, so it fits. VA say the trach is easy. I will be in ICU and hosp up to a...
  7. J

    Decline Question

    Hi My Mother was diagnosed with bulbar onset ALS summer 2012. She is currently almost completely paralyzed (some hand and arm movement), on bipap 24/7, has peg tube, in bed at all times due to sitting up it hurts to breath (with bipap), on Hospice. She is on anxiety medications and some pain...
  8. M

    Help my mother

    Hi everyone, Not sure where to start but I wish I can find some kind of help... Mom was diagnosed a bit more than 2 y ago with bulbar onset. It has progressed enormously in the past months to the point where she does not talk, eat and move anymore; just slightly her head and one of her hands...
  9. A

    Feeding Tube

    I have a question about feeding tubes. My PALS was diagnosed 18 months ago and has been on a BiPAP 24/7 for over 1 year. I don't know what his FVC (I think that's the correct term) is but I expect it is not good. Is he still eligible to get a feeding tube? His speech and ability to swallow had...
  10. K

    Bipap Battery Issues

    Hi, My mum is using a Breas Vivo 40 bipap 24/7. The internal battery needs replacement as it only runs for 10 minutes instead of 1 hour now. We are thinking of getting an external battery. Does anyone has any experience with getting a compatible external battery for their bipap? I was...