bipap 24/7

I’ve always had an interest in hearing about people’s dreams. I’m talking about the ones people have during sleep. I actually did a thesis during medical school on dream interpretation. Last night I had one where I was walking around and realized I was wearing a BiPAP mask. Every time I...

Hi - My name is Michelle and my sister was diagnosed with ALS April 2015. She seems to have got it pretty bad and drawn out. At first it was just her tripping a lot, then she would just fall and couldn't get up, couldn't get off the toilet or out of bed without help. As it got worst and worst...

Hi, I like to know if it’s true that if a person with als who uses a bipap 24/7 will not need invasive ventilation?

My Mom has been getting weaker and her breathing seems to be going fastest. She is on bipap 24/7 and seems relatively comfortable on it but when the nurse came the other day her O2 level was 93 - previously it had been above 95. She doesn't ever complain even when I ask. I know there is no...

Hi, It has been some time since I have been on the forum, but last night I had quite a scare and I'm hoping to get some advice. I have been having increasing difficulty with swallowing in the last few months. At my last doctor visit we discussed a peg and I am scheduled for the procedure on...

I am on bipap 24/7 for the last two-three weeks, and it's a big hassle. I know it's only going to get worse, and I still have to do my complicated two businesses taxes. Wifey and sons are supportive. D-I-L needs a job, so it fits. VA say the trach is easy. I will be in ICU and hosp up to a...

Hi My Mother was diagnosed with bulbar onset ALS summer 2012. She is currently almost completely paralyzed (some hand and arm movement), on bipap 24/7, has peg tube, in bed at all times due to sitting up it hurts to breath (with bipap), on Hospice. She is on anxiety medications and some pain...

Hi everyone, Not sure where to start but I wish I can find some kind of help... Mom was diagnosed a bit more than 2 y ago with bulbar onset. It has progressed enormously in the past months to the point where she does not talk, eat and move anymore; just slightly her head and one of her hands...

I have a question about feeding tubes. My PALS was diagnosed 18 months ago and has been on a BiPAP 24/7 for over 1 year. I don't know what his FVC (I think that's the correct term) is but I expect it is not good. Is he still eligible to get a feeding tube? His speech and ability to swallow had...

Hi, My mum is using a Breas Vivo 40 bipap 24/7. The internal battery needs replacement as it only runs for 10 minutes instead of 1 hour now. We are thinking of getting an external battery. Does anyone has any experience with getting a compatible external battery for their bipap? I was...