This is my first post, but I have been lurking for a while, soaking up all the information I can process. Let me tell you, I have learned more on this forum than all other venues available, and I thank you all.
My husband started with foot drop in 2011, then fasciculations and...
motor neuron disease
I would like any knowledge on what criteria I may be missing for my doctors to give me a diagnosis if in fact it is ALS. My thenar and feet muscles have atrophy. Two muscle biopsies show fiber type grouping and chronic denervation with reinnervation, positive Babinski, brisk reflex, nerve...
Steve is finally sleeping for the first time today. The procedure went well with a couple of minor issues. While in surgery the doctor found some small spots on his stomach so took a biopsy. When he got into recovery he was cough in up a lot of fluid. Although I guess that could be good.
I have been waiting for four months to see neuromuscular specialist in Birmingham and my appointment is next week. I can barely get around in my house (bilateral "bad legs").
Neurologist I saw in June when my body was swaying like a metronome said he wanted to see me again in 6...
Hi. I want to share my ALS journey with others to let them know that it is possible to be misdiagnosed with ALS.
Since my story spans 8 years, I will try to give a brief synopsis of what cured (yes, I said CURED) me.
It started in 2009 when I lost strength in my left hand. It quickly spread to...
My journey began nearly 30 years ago, when I woke up one morning and couldn't walk. I previously had a bullseye tick bite, and assumed Lyme disease. Every test taken since has been negative. I had symptoms come and go for many years, with exhaustion, stiffness, and leg weakness being my main...
motor neuron disease
motor neuron symptoms
Here is my history:
2013-2014: 2-3 times a year, sclera of left eye would turn red and eye would be very painful when focusing on objects within 2-3 feet (such as reading, looking at hands, etc.). Treated w/ antibiotic and then steroid eye drops by PCP with no success.
Some of you may know about ALS TDI's Precision medicine program. The first phase required a trip to Massachusetts and involved blood tests and a skin biopsy as well as ongoing monthly activities that you do at home. Several of us participate in that but others were not able to
Phase 2 is...
Okay, here goes: 49, Male, Caucasian.
About 3+ years ago, I went to open my fridge door and ended up pulling myself into the closed door instead. I thought it odd how the door was suddenly more difficult to open these days; nobody else in the household seemed to notice. About a week later, I...
I thought I would post this here in hopes of helping others who have either been told they possibly have als or those who believe they do.
I was told I had possible als due to four abnormal emg and clinical exams, however there were always some symptoms that did not add up and I have very...