bedridden

  1. A

    Will I get it as well?

    First of all, thank you to anyone who takes the time to read this. This is the first time I have ever actually reached out to anyone regarding my fears. I have always just led my family and friends to believe that I understand that I will not get ALS.... To start at the beginning... My mother...
  2. D

    Bedridden?

    What is the final straw that leaves PALS bedridden? I am curious about what it is that causes ALS patients to be in bed 24/7. Pain, lack of help, lack of equipment, depression? Other?
  3. W

    Sure need helpful information

    Please forgive me if this has been covered elsewhere on the site. My stepfather was diagnosed a couple of months ago but we believe he has had symptoms for a at least two years before. He's currently home on a vent and bedridden. My mother is his primary caregiver and she 's wearing out. Now I...
  4. G

    Help!

    I know not everyone with a PEG has to pay $35 hour for care. Mom is bedridden, with PEG, and currently in a nursing home. She wants to come home and I want her to, also. However, none of the local home health agencies will touch her unless we use an LPN at a cost of $35 an hour to sit with...
  5. T

    CALS help PALS with bathroom

    My mom was diagnosed in March 2013. She is unable to walk and is quickly getting to the point where she cannot support any weight on her legs. We have been transferring her manually from her lift chair to toilet, but she is overweight and its becoming unsafe for her to continue to move her in...
  6. Jeff Long

    Fun with ALS...

    Okay, I need to know that I’m not the only one who “plays” with folks about ALS. So here are a couple of minor confessions about people I have toyed with… - Wasn’t willing to part with thousands of dollars to have genetic testing done, but at one quarterly ALS clinic visit I was asked if I’d...
  7. canmark

    TEDTalk: Jane McGonigal: The game that can give you 10 extra years of life

    I thought this was interesting, and may be beneficial for some PALS. The talk is described thusly: When game designer Jane McGonigal found herself bedridden and suicidal following a severe concussion, she had a fascinating idea for how to get better. She dove into the scientific research and...
  8. J

    Easy Pivot EP-82 for sale

    I have a used Easy Pivot EP-82 for sale. It sold for over $2000 new with all the options that were added. I will sell it for $800 plus shipping charges. I can deliver in the 509 area code, otherwise we would have to use UPS or FedEx. I purchased it to help with caring for my 94 year old...
  9. S

    Questions

    My mother inlaw just received her Bipap and is refusing to get used to it. She keeps saying that it won't be long till she's going to pass on and feels that she doesn't want to use another equipment. Her onset problem of drop foot began in May 2010. She was diagnosed Aug 2012. She is walking...
  10. M

    5 year anniversary

    The hubs and I just celebrated our 5 year wedding anniversary. He was diagnosed 7 months before we got married. I asked God to give me at least 1 year with him and I have gotten 5. Granted he is vented and bedridden, but he has a Dynavox and we still have a great time watching movies and...
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