bedridden

  1. P

    suggestions, recommendations appreciated

    we are behind in getting equipment for als / paralysis. i spent the first two years of this, researching and trying experimental treatments. my wife and i went to Thailand for 7 weeks chasing stuff. drove out to Colorado, spent 7 weeks there, chasing stem cell. my body continued losing...
  2. B

    IVIG Response?

    Hello all, My mother was recently diagnosed with ALS at a medical school hospital after having an initial diagnosis of MMN from her local neurologist. There was some evidence of conduction block in her first EMG, but the opinion from the doctor at the hospital said it didn't seem significant to...
  3. B

    Advanced ALS

    My Dad (80 years old) has advanced ALS. It happened extremely fast. Feb. he passed out, had every test known and came out with a clean bill of health. Swollen ankle a few months later and no Dr. could figure out why. In May he had what we thought was a cold/sinus/flu, then all of a sudden his...
  4. N

    End stage I think?

    My grandmother (87yo) started with right arm numbing over the winter. January, maybe? It gradually got worse to the point that she couldn't use the arm anymore. No one could figure out what was going on. At the end of July, she fell in the tub and then passed out and ended up in the ER. She...
  5. K

    Waiting for DNA results for dad

    Hello, I'm new here. My dad has just been diagnosed with MND. He's 68. The doctor told us last week that she is about 50% sure that it's familial MND. We have no history of it that we are aware of but my fathers mother died in her late 50's from an unknown illness. She was very frail and...
  6. J

    Keep the Faith

    I've had something on my mind lately that I would like to share with everyone. 4 years ago this coming April, after spending 42 days in the hospital and the last 7 months flat on my back in the bed after going on a ventilator, I was being prepared to be released to go home in the next few days...
  7. G

    Anyone else deal with CDiff before?

    Not much fun to clean up a bedridden person just to have them do it again...I think mom has actually gotten every complication you can get from being in LTC!
  8. G

    Husband's family not supportive

    My husband has been going to the doctor for several months now and he now has a probabable diagnosis from the first neurologists and the ALS Specialist said it was early stges and he is confident he will give him a diagnosis at the next vist. He is goung to another ALS Specialist for second...
  9. G

    Managing appointments when bedridden

    How do you manage appointments when bedridden? I am thinking about calling one of mom's specialists and seeing if she can be admitted to the medical center where they all practice so she can be seen by them without the traveling by ambulance and waiting rooms. Do you guy have any ideas?
  10. N

    riluzole question

    Aside from the cost (which is outrageous even in Canada) what are the feelings here about whether it works even for a while, especially for someone newly diagnosed? If it just extends bedridden unable to move/speak times, then the money is better spent on my family. If it gives a few more months...
Back
Top