bed

  1. Duker52

    Anxiety

    Do any other PALS experience anxiety at night? This past week I have found myself getting very anxious at night. It is not about anything in particular. Although last night I freaked out because I realized that the only way I can get to a sitting position on the side of the bed is with help...
  2. S

    Hospital Bed

    What size sheets are needed for a hospital bed, regular twin or extra long twin?
  3. Nuts

    Not Feeling...

    It's been some time since I've been able to make much of a post. I think of things I'd like to share, but then I just can't. What's that about? What is this part of the rollercoaster that leaves me not feeling. I think. I respond. I plan. But I don't seem to be able to feel. This past...
    • Nuts
    • Thread
    • anger back bed bipap contracture cost cry driving hha hours life meals night pain shower sleep trilogy trip wanted
    • Replies: 32
    • Forum: Current caregivers
  4. C

    Terrible back and hip pain from ALS?

    Trying to find out if this pain I'm having is from ALS or? Every single night I go to sleep I wake during the night and in the morning with terrible pain in my right hip and lower back. If I try to move, even an inch attempting to turn over it hurts so bad and is nearly impossible, I just...
  5. tripete

    Sleeping and Breathing

    For the last week I am unable to sleep very much because even with my Bipap on I cant get breath lying down. My Bipap is adjusted to the "highest" setting according to the therapist. I do have an adjustable bed but have never been a person who can sleep sitting up or on my back. So I have it...
  6. B

    Please help me

    Hi there I'm a 24 yo female living in Glasgow Scotland, I feel that looking back maybe my right hand hasn't been as strong as the other hand though this all started around 5 days ago I was on nightshift (I'm a critical care nurse) and when I was writing up my notes i noticed I had a really sore...
    • Briony
    • Thread
    • anxiety arm back bed female mnd please help please help me shaking stupid twitches twitching work wrist
    • Replies: 52
    • Forum: Could this be ALS?
  7. J

    This beast is killing my brother

    I don't write here much but am one that feels like I wouldn't be able to mentally get through this horrible progression of ALS without the people here. Mike is 47. He's my little brother, single with 2 young kids. I happen to be single with 2 grown children and live nearby so I am his main...
    • Jlynn
    • Thread
    • als anger bed brother caregiver children crying early eyes feeding feeding tube insurance kids life life insurance meds money progression sad twitching vent young
    • Replies: 13
    • Forum: Current caregivers
  8. M

    Sleeping Comfortably

    My fvc drops 25% when I lay down and I can't keep myself from falling over sideways (no matter how many bolsters) when propped up. I considered a medical bed, but after several nights in hospital falling to side, I finally got an electric Lazyboy instead. It has been such a godsend. I got one...
  9. F

    Loss of appetite

    I am hungry in the morning and have a bowl of cereal, and I have a sandwich for lunch. My problem is dinner. I don't feel like eating any food for dinner. Sometimes I take one bite and then stop eating. I actually feel nauseous at the thought of eating. This makes my CALS, my husband, very...
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