bed

  1. W

    Does this sound like ALS?

    I apologize if I accidentally posted this twice. I tried posting earlier but I’m afraid I did something wrong and lost the post because I can’t find it. I’ll try to re-type my sentiments from my earlier post... I went to visit my PCP regarding muscle twitching. I have had twitching for about...
    • weebit worried
    • Thread
    • abdomen advice als als? atrophy back balance bed fingers muscle muscle twitching neurologist nose pain questions shoulder supplement symptom testing twitching vitamin d wanted work worried wrong
    • Replies: 0
    • Forum: Could this be ALS?
  2. L

    Like new pressure-relieving bed (in Oregon)

    Hi! We've been trying to find someone to donate our Stratus Turn mattress and adjustable hospital bed frame to, but not having much luck. Only used 2 months. We're in Portland. Please contact me if you have any interest!
  3. K

    Thoughts on When to Get Hospice

    My PALS and I have decided to use hospice when the time is right. He uses a Trilogy about 17 hours a day, does not want to be trached or have a PEG. He is able to eat whatever he wants (with the help of water to wash it down), he transfers from scooter to chair/commode but anything he does is...
    • katygal
    • Thread
    • adjustable advice age bed breathing breathing issues chair clinic cough assist decline eating fvc helpful hospice hours love mip peg pwc scooter support transfers trilogy
    • Replies: 6
    • Forum: Current caregivers
  4. B

    Worried About Symptoms

    Hello! Thank you for allowing me to post this on this forum. I really appreciate any insight! About a year ago, I was diagnosed with a gluten sensitivity, hiatal hernia, and too much stomach acid. I was placed on a medication and a gluten-free diet. After a few weeks, I noticed some twitching...
    • bp1234
    • Thread
    • abdomen ability als arm balance bed children diagnosed diet free friend go away meds mistake muscle muscles neurologist sensitivity shoulder symptom symptoms twitches twitching weakness worried
    • Replies: 8
    • Forum: Could this be ALS?
  5. J

    How are you?

    How I hate that question now. It's become almost a default greeting. I know most people are trying to be kind by asking, but I honestly don't know how to answer anymore. I usually just say "We're OK" or "We're hanging in there". But honestly, we're not OK. And I'm sometimes just hanging...
    • Jrzygrl
    • Thread
    • angry anxiety back bed chair cold crying decline frustrated heart hours life meds night progression sad sling story wanted wrong
    • Replies: 153
    • Forum: Current caregivers
  6. B

    Bed Railings

    My sister just purchased a Right Flexabed but misses the handles (railings) she was able to use with her regular bed. Has anyone heard of a free-standing, over-the-bed device or any other option for use when attached side rails are not? Thank you
  7. D

    Need To Get Up at Night to Potty

    Until last night I have been able to get out of bed to use a potty bucket. Last night I had to call my wife 2 times to get me up. I was able to get up a couple of times myself? I get up my using right arm an swing legs over side of bed. I don’t even want to go to bed tonight. I am a 77 YO...
  8. E

    Won't go to the Hospital Bed!

    Cals here. Husband dx in 2013. For the last two years, he has lived in a recliner (sleeping there). Of course, goes to the power chair when need be. But, now he has zero neck muscles and needs suctioning several times a day. We have a wonderful hospital bed with all the bells and whistles...
    • Emily B.
    • Thread
    • back bed cals caregivers chair muscles power power chair work
    • Replies: 12
    • Forum: Current caregivers
  9. S

    Very Concerned about Bulbar

    Thank you to anyone taking the time to read this and giving me your thoughts and insight. Please know that it is truly appreciated. I have read the stickies, but still have some questions. I am a 40 year old male. I began with a twitch in my left bicep in early December 2018, but the...
    • SLU27
    • Thread
    • allergies back bed bulbar bulbar onset clinical concerned early emg family family member friend muscle neurologist onset problems questions reading swallowing symptoms tremor twitch twitches twitching voice weakness
    • Replies: 4
    • Forum: Could this be ALS?
  10. L

    Anxiety and Corcern over recent symptoms

    First off I’d like to say thank you for the recent acceptance into the community, I have so much respect for all of you who are fighting this terrible disease. I want to start out by saying that I am a 26 year old male who has been healthy relatively my entire life. Lately I have been having...
    • lsasse15
    • Thread
    • anxiety back bed cramping diagnosed early emg fatigue foot gallbladder life neurologist night pain shortness of breath sleep symptom symptoms tests twitching work
    • Replies: 18
    • Forum: Could this be ALS?
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