bed

  1. B

    Worried About Symptoms

    Hello! Thank you for allowing me to post this on this forum. I really appreciate any insight! About a year ago, I was diagnosed with a gluten sensitivity, hiatal hernia, and too much stomach acid. I was placed on a medication and a gluten-free diet. After a few weeks, I noticed some twitching...
  2. J

    How are you?

    How I hate that question now. It's become almost a default greeting. I know most people are trying to be kind by asking, but I honestly don't know how to answer anymore. I usually just say "We're OK" or "We're hanging in there". But honestly, we're not OK. And I'm sometimes just hanging...
  3. B

    Bed Railings

    My sister just purchased a Right Flexabed but misses the handles (railings) she was able to use with her regular bed. Has anyone heard of a free-standing, over-the-bed device or any other option for use when attached side rails are not? Thank you
  4. D

    Need To Get Up at Night to Potty

    Until last night I have been able to get out of bed to use a potty bucket. Last night I had to call my wife 2 times to get me up. I was able to get up a couple of times myself? I get up my using right arm an swing legs over side of bed. I don’t even want to go to bed tonight. I am a 77 YO...
  5. E

    Won't go to the Hospital Bed!

    Cals here. Husband dx in 2013. For the last two years, he has lived in a recliner (sleeping there). Of course, goes to the power chair when need be. But, now he has zero neck muscles and needs suctioning several times a day. We have a wonderful hospital bed with all the bells and whistles...
  6. S

    Very Concerned about Bulbar

    Thank you to anyone taking the time to read this and giving me your thoughts and insight. Please know that it is truly appreciated. I have read the stickies, but still have some questions. I am a 40 year old male. I began with a twitch in my left bicep in early December 2018, but the...
  7. L

    Anxiety and Corcern over recent symptoms

    First off I’d like to say thank you for the recent acceptance into the community, I have so much respect for all of you who are fighting this terrible disease. I want to start out by saying that I am a 26 year old male who has been healthy relatively my entire life. Lately I have been having...
  8. P

    neck pain

    My husband, Frank, has had increasing neck flexion (chin resting on chest) and tilt to the right. His head is now so far forward that the wheelchair headrest supplies no support. He has a neck brace but even this no longer helps. I am applying heat and he is taking extra strength Tylenol with...
  9. K

    Protecting Against Heel Sores

    My PALS is beginning to feel some sensitivity on his heels due to being in bed longer at night and trying to keep his feet up during the day. I thought about rolling up a towel really tight and placing it under his ankles at night or using a roll pillow. I also know there are boots but wondered...
  10. worrieddaughter77

    My dad is still kicking, but recently got the flu.

    Hello, Sorry I've been away from the forum for a long time. Two teenagers, one baby, and full time care of my dad (shared with my mom) was tough.. And then... We decided to move from the USA to Finland. It was my husband's idea actually... He dragged us in June 2018 because he thought we could...
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