bed

  1. P

    40 year old male'-sudden weird twitching. Really scared

    Soon to be 40 year old male. I eat right and exercise 5 days a week. I walk hills for 40 minutes during my lunch hour then do the steps twice. I also do body weight training. Suddenly started having these twitches all of a sudden Friday at work. It started with my right pectoral muscle. It...
  2. B

    Drinking too much water?

    My wife is in a fairly late stage of ALS; no limb movement, speech very hard to understand entered home hospice care, vial capcity now in 20s-30s (I have a blog entry explaining more). She drinks water constantly, day and night, and for this reason spends most of her time soaked. Despite a towel...
  3. M

    Getting out of bed

    My father's arms have failed him before his legs. Up until now he has been kind of "rolling" out of bed onto his knees and using his stronger left arm to hold on to the mattress and stand. They recently lowered the mattress because it was too high for him to get into. This now has made it...
  4. M

    Terrified I am 26 atrophy

    Good evening Ladies and Gents hope your all doing good. I do apologise in advance for coming on here when fingers crossed I really shouldn’t be on here. I have noticed with my calf’s from behind that my right one looks thicker than my left one and it looks like it’s got a few dents now I can...
  5. Buckhorn

    Very helpful transfer "sling"

    If your PALS is still able to stand, even with great difficulty, this transfer "sling" may help you to maintain your ability to do stand-pivot transfers from bed to w/chair, etc. I have found it amazingly helpful for transfers in and out of the car. Your PALS must still have some leg strength...
  6. C

    ALS Equipment for Donation- Richardson,Tx

    Per mobile M300 Wheelchair Invocare Hoyer Lift Enable Eye-gaze machine, FRS custom solutions hospital bed frame w/ inflatable mattress invocare miro air 85 mattress & control medline stationary suction model hcs 7000 Devilbiss homecare suction unit humidifier 150 ambient hugo transport chair...
  7. N

    Most comfortable sleeping positions for pals?

    Hello, I've been diagnosed with ALS for two years now and I have a hard time getting comfortable in bed. I have pain from my hips to my knees. I have a hospital bed with the circulated type air mattress. I sleep on my side and I can manage to get on stomach when the leg pain sets in. Then I...
  8. C

    Foot plates on PWC

    I would like to know if you use a PWC if you have power foot plates? My PWC has manual foot plates which require me to lean over and manually fold them so I can transfer from the PWC to bed, toilet etc. Its becoming more difficult for me and I'm afraid I could roll out of chair and the...
  9. 4tloml

    Heart Rate/Blood Pressure Question

    Has anyone experienced widely fluctuating heart rates and blood pressure even as O2 readings remain stable? Do you know what it may indicate (if anything)? My PALS's heart rate jumps around from the 50s to the 120s and seems inconsistent with fluctuating blood pressure. (Sometimes BP readings...
  10. Erika

    More changes as the end gets closer :(

    My mom has been sleeping most of the day since september 15 after a crisis with secretions and saliva where we used the coughing assist. She was able to stay awake for about the time when my brother came to visit about 10 days ago. :) But every day after that, its harder and harder for her to...
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