Hello, I am new to this forum, and wound up here after experiencing another symptom that I have recently had in a list of others to keep pointing me to ALS... I am currently un-diagnosed, but have started clinical testing. I'm hesitant to continue because I personally can no longer afford the...
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New to the forum, I was diagnosed 11/21/16, and have been using THC and CBD to combat the daily symptoms. I have been taking high concentrations of both daily, and am seeing the progression slow a bit. I vaporize and smoke since I still can.
I'm assuming my fellow PALS want to know what...
First visit to Neurologist she did a strength exam and I failed, at the time I had a lot cramps so she prescribed Baclofen twice a day. Had to wait a month for the EMG. Started taking the Baclofen within 3 weeks I started to feel so weak. Next appointment with the EMG Test. After a week the...
Hi all! I have been as busy as I can be in life and haven't checked in in so long, I bet most of you don't remember me!
Basically as a reminder, I've had pls for about 25+ years, but was dx'd officially in 2009. The road to dx was so rough and caused me to loose faith in the medical system...
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My PALS was told that Baclofen is used to help prevent silent aspiration.
Has anyone else heard this? I don't know how anyone would know if it were preventing silent aspiration since it is silent?
Our Neurologist advised that he has had success with it for muscle spasms and stiffness but has...
Hi PALS,
My father is having hot flashes and is miserable. The over heating began around the beginning of the month. It lasted only 20 minutes to a half an hour but now it's lasting for hours and getting worse. He is only sleeping 2 hours a night.
I called his doctor who said that this over...
Hi,
I have recemntly been told that I probably have PLS, although the neurologist is still ordering tests to learn more.
I've always been active, most recently running half marathons. The last one I ran was in August... and now I need a walker or wheelchair to get around. I run to relieve...
M has progressed significantly in the last year. He has given up walking and currently is using his Zinger (our traveling electric wheelchair) in the house. We have an appointment at Spaulding for him to be fitted for a power chair. I have appreciated the recent threads regarding the PWC...
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cbd
electric wheelchair
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At night when spasticity is at it's worst do you find as the baclofen is kicking in -
That your toes begin to dorseflex up and down? Thats how i know the spasticity is getting better. On the one hand it is good - things are loosening up, but bad because the toes flex so violently that i swear...
Have not posted in quite a while, mainly because I still don't have a diagnosis. Probably pls or hsp.....not that it makes much difference. I'm thinking pls as I have upper extremity involvement.
Anyway, my question is this. I have for the past three months bee experiencing facial spasm or...