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So, here I am exactly one week out from my husband's death. It was really only after he actually passed that I have started to realize the absolute hellfire we went through together. There was beauty, love, and moments of joy for sure. I am very sure I never felt closer to or loved another...

Hi Everyone, my name is Juri. I have been living with ALS for 12 years now, and I had been gone from this site for about ten years, and during that period of time my FRS dropped from 23 to 1. I am on vent 24/7 (with the use of tracheotomy), I use an eye gaze computer for communication, and I...

Good morning and thank you for accepting me to post on this board. I did not ever think I would be making a post like this. I have read through the stickies and the previous posts regarding twitching and symptoms. I still had a few questions, if you don't mind. I have been to my PCP and...

Dear all, thank you very much for taking the time to read this and I wish all of you the very best. I have read the stickies and I know that a lot points away from ALS, however my neurologist cannot really tell me what is going on so I thought I'd ask. I don't know if it is related but in...

hello. My name is Brianna and I'm 26 years old. I have read the stickies and out of all the symptoms I've been experiencing the main one that concerns me is atrophy. I'll try to give a brief timeline of my symptoms and any feed back is greatly appreciated. I promise not to drag anything on if me...

Hello to all, I am concerned about a couple things going on, and hoping you guys would be able to help me, or give me some ideas on my next step. Everything started about a 1.5-2 years ago. I flew up to Montana for the week to spend time with family. Had a good trip until the end when I got...

Hi everyone; let me introduce myself. My name is Yasmin and I am a 25 year old female. I hate that I’ve come here and I wish I didn’t get to this point because I feel absolutely awful for doing so but the anxiety ended me up in the hospital and I am at my lowest point with this fear or...

Thank you for taking the time to read what I have going on. I am a 44 years old mom of two adult children and a 10 year old. Last month, my boss called an ambulance and had me taken to the hospital because I was having problems talking, couldn’t swallow and couldn’t lift my leg and I panicked...

I'm sorry to be posting this but I'd hugely appreciate your insights. I'm a 47 year old man. My first issues was noticing my watch falling off my left arm, which provoked me to notice decreased muscle mass in both forearms. This has been followed by very noticeable loss of muscle mass in both...

So sad. Husband diagnosed end of December. He's very used to being in charge and making all the decisions. I am a RN/NP. So I know a bit about caregiving. He fights me on all the ways to do things. Slowly he is beginning to listen to me but it's frustrating. I only seem to cry when...